Monday, February 28, 2011
- managing our relationships and time as we become increasingly connected in this world where we are already feeling bombarded by emails, pagers, cell phones, list-serves;
- maximizing the potential of social media to share, with clear intention, the message that our field as to offer: about high quality and truly patient/family-centered healthcare that is built on evidence and compassion.
Monday, February 28, 2011 by Suzana Makowski ·
|Vancouver Skyline Photo by Patricia Maani, DRNP|
by Christian Sinclair ·
Sunday, February 27, 2011
For those of you who were able to go to the Annual Assembly in Vancouver almost two weeks ago, I am hoping you will participate in a little experiment. I tried this last year with only one person offering a submission (Thank you Julie Childers!). I am encouraged by the amount of people at the social media session that there may be a few more of you out there willing to try.
So please send me your lessons learned from the 2011 AAHPM/HPNA Annual Assembly. You can send them in any format you like and any length you like. Maybe it is just one single thing. Maybe it is a list of things. Maybe it is a narrative that I can put up as a blog post. Please make it about your clinical or professional education and not about what you liked/didn't like about the Assembly. And don't forget to tell me if you would like to be cited openly or anonymously. Email me at email@example.com or post in the comments.
Here is my collection of edited tweets covering what I learned at the conference since I used Twitter to take notes as well.
Sunday, February 27, 2011 by Christian Sinclair ·
- Joan Didion’s “Year of Magical Thinking” (2005), (Pallimed: Arts review here)
- David Rieff’s “Swimming in a Sea of Death” (2008),
- Anne Roiphe’s “Epilogue” (2008)
- Roland Barthes’s “Mourning Diary”(2010).
Two new contributors to this growing genre are Joyce Carol Oates’s “A Widow’s Story,” (2011) and Meghan O’Rourke’s “The Long Goodbye,” (2011), and the New York Times did us the favor of letting us in on what drove these authors to write about their grief.
by Christian Sinclair ·
I know many of you went on adventures while in Vancouver so if anyone has some great photos or videos from around Vancouver. I will post a few that I took to help whet your appetite and encourage you to send in more to firstname.lastname@example.org. The first two (after the Olympic Flame picture) are videos of the opening bands that will click you through to TwitPic to watch.
by Christian Sinclair ·
Saturday, February 19, 2011
One of my favourite sessions every year at the AAHPM Annual Assembly is the State of the Science Plenary session. This year in Vancouver, Drs. Nathan Goldstein and Wendy Anderson took the crowd on another whirlwind tour of the past year's remarkable palliative care research, focusing on eight of the most significant studies. Pallimed commented on several of the studies and the others were certainly retweeted throughout the palliative twitterati when initially published.
If I've missed important commentary on these studies from others in the palliative care world, let us know and I can add links. Thanks to Drs. Goldstein and Anderson for their wonderful review and to all who advance the science of our field with their work.
Here's the list:
- Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, Dahlin CM, Blinderman CD, Jacobsen J, Pirl WF, Billings JA, Lynch TJ. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010 Aug 19;363(8):733-42. PubMed PMID: 20818875. (Pallimed commentary here, here, and here. See NEJM editorial here.)
- Abernethy AP, McDonald CF, Frith PA, Clark K, Herndon JE 2nd, Marcello J, Young IH, Bull J, Wilcock A, Booth S, Wheeler JL, Tulsky JA, Crockett AJ, Currow DC. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet. 2010 Sep 4;376(9743):784-93. PubMed PMID: 20816546; PubMed Central PMCID: PMC2962424. (Pallimed commentary here.)
- Unroe M, Kahn JM, Carson SS, Govert JA, Martinu T, Sathy SJ, Clay AS, Chia J, Gray A, Tulsky JA, Cox CE. One-year trajectories of care and resource utilization for recipients of prolonged mechanical ventilation: a cohort study. Ann Intern Med. 2010 Aug 3;153(3):167-75. PubMed PMID: 20679561; PubMed Central PMCID: PMC2941154. (Pallimed commentary here.)
- Boyd EA, Lo B, Evans LR, Malvar G, Apatira L, Luce JM, White DB. "It's not just what the doctor tells me:" factors that influence surrogate decision-makers' perceptions of prognosis. Crit Care Med. 2010 May;38(5):1270-5. PubMed PMID: 20228686.
- Ullrich CK, Dussel V, Hilden JM, Sheaffer JW, Lehmann L, Wolfe J. End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care. Blood. 2010 May 13;115(19):3879-85. Epub 2010 Mar 12. PubMed PMID: 20228275.
- Givens JL, Jones RN, Shaffer ML, Kiely DK, Mitchell SL. Survival and comfort after treatment of pneumonia in advanced dementia. Arch Intern Med. 2010 Jul 12;170(13):1102-7. PubMed PMID: 20625013; PubMed Central PMCID: PMC2914628. (Pallimed commentary here.)
- Kirchhoff KT, Hammes BJ, Kehl KA, Briggs LA, Brown RL. Effect of a disease-specific planning intervention on surrogate understanding of patient goals for future medical treatment. J Am Geriatr Soc. 2010 Jul;58(7):1233-40. PubMed PMID: 20649686; PubMed Central PMCID: PMC2964863.
- El-Jawahri A, Podgurski LM, Eichler AF, Plotkin SR, Temel JS, Mitchell SL, Chang Y, Barry MJ, Volandes AE. Use of video to facilitate end-of-life discussions with patients with cancer: a randomized controlled trial. J Clin Oncol. 2010 Jan 10;28(2):305-10. Epub 2009 Nov 30. Erratum in: J Clin Oncol. 2010 Mar 10;28(8):1438. PubMed PMID: 19949010.
Saturday, February 19, 2011 by Lyle Fettig, MD ·
Tuesday, February 15, 2011
Given our marketing budget of zero dollars from our all volunteer team and complete lack of business model we have to be creative when it comes to spreading the word about the palliative care blogosphere. For the past few years we have had street teams of Pallimed readers who are willing to be social and talk to other people about the community that you the readers have created here. Pallimed would not be what it is today without your input and comments. It likely would have crumbled to the ground lost to the internet forever without you.
Tuesday, February 15, 2011 by Christian Sinclair ·
Someone emailed me to remind me that international data plans are not very cheap compared to what you might be used to on your unlimited data plan. So be very careful when tweeting from your phone, because you may think that the tweet going out is not a lot of data but most mobile apps will also check Twitter for new updates and push them to your cell phone.
by Christian Sinclair ·
Monday, February 14, 2011
Since 2007 I have posted a yearly preview of the AAHPM/HPNA Annual Assembly. Usually it is a LOT earlier then the few days before the conference, but I thought this year I would try to post closer to the conference and maybe get people's feedback the evening after they went to the sessions. Always give feedback on the official forms/online, but if you want to talk about any session you found particularly helpful feel free to post here.
(Don't forget to read Handy Hints for a National Meeting either!)
Monday, February 14, 2011 by Christian Sinclair ·
The American Academy of Hospice and Palliative Medicine / Hospice and Palliative Nurses Association (AAHPM/HPNA) Annual Assembly is this week in Vancouver, BC so expect nearly daily posts and for email subscribers daily emails. After that Pallimed will return to the usual posts of 1-2x/week. Come back and check for comments too as hopefully many people will be talking about what they are learning.
by Christian Sinclair ·
There are three ways to monitor the Twitter Coverage at the 2011 AAHPM Annual Assembly in Vancouver, British Columbia. None of which require you to be signed up on Twitter, but I would encourage it. Here is the post about reasons why to participate, and here is the post on how to participate.
All information is organized around the hashtag #hpm. *
1. Tweetchat - a web based way to monitor one subject on Twitter organized around a hashtag
2. What The Hashtag (good for overall stats, and ability to download a transcript)
3. CoverItLive - this is a way to see the live tweets and scroll though the older ones and is embedded below in this blog post. This will be active Wednesday through Saturday and available for review anytime.
*If you are wondering why #hpm is the hashtag...#HPM is already a strong community of palliative advocates on Twitter with a weekly Tweetcaht so they would be more likely to spread posts. #HPC (Hospice and Palliative Care) is also used by many many more people talking about Hewlett Packard Computers, so there would be too much noise in the stream. #AAHPM is too focused on only one of three sponsoring organizations. #HPMAssembly (which was used in 2010) is too long. #HPM11 loses out on the community already built around #HPM
by Christian Sinclair ·
Sunday, February 13, 2011
The AAHPM took a bold step into social media last week in launching a short video about palliative medicine, which highlights the site PalliativeDoctors.org, the consumer oriented website supported by the Academy. This is not your classic cliché'd video showing caring doctor/actors holding hands and nodding empathetically, with soft plain music and older people sitting on park benches with each other that you might expect to see from a awareness campaign. (Disclaimer: I was on the task force that worked on this video, but I am not writing as an official representative of AAHPM.)
Sunday, February 13, 2011 by Christian Sinclair ·
by Christian Sinclair ·
Another year, another Annual Assembly, another Pallimed Party! We rocked it in Salt Lake City, Tampa, Austin, and added GeriPal in 2010 in Boston. We hope that anyone coming to Vancouver will join us Thursday night from 8-10pm at the ShowCase Restaurant and Bar in the Marriott Pinnacle Hotel. If you are on Facebook we kindly ask that you RSVP so we make sure we have enough appetizers for the group. If you are not on Facebook or prefer not to RSVP there, just shoot me an email.
by Christian Sinclair ·
Tuesday, February 8, 2011
A hearty huzzah to the Eric Widera and Alex Smith and the great team of contributors at our friendly neighborhood blog GeriPal for being nominated to the final 5 of Medgadget's 2010 Medical Weblog Awards. The competition is daunting but as of this posting GeriPal is out to a slim lead over the nearest competitor the Renal Fellows Network (Hey that gives me an idea for a blog...nevermind.) But they need your help. There are a heck of lot more nephrologists and emergency medicine docs (the other blogs) to vote. But they lack our wonderful online network of supporters in palliative medicine.
Tuesday, February 8, 2011 by Christian Sinclair ·
Journal of the American Geriatrics Society has a short article about illness trajectories in patients with ESRD.
It's part of a small trend I've noticed the last few years of more critically appraising (ie, with observational data) the important and widely promulgated 'illness trajectory' models used in palliative care education. This article (free full-text available from BMJ) is a concise summary of the illness trajectory concept and importance. It recapitulates these 3 trajectories (click on image on the right to see in full): rapid steady decline in cancer, slow/steady decline in dementia, and steady overall decline punctuated by marked declines followed by (incomplete) improvements seen in the organ failures such as CHF, COPD. They have been proposed as a way of helping patients understand their expected futures, as well as identifying patients appropriate for palliative care-type interventions, and have probably been part of countless palliative care didactic presentations - I've certainly seen them dozens of times, and have used them personally.
by Drew Rosielle MD ·
Wednesday, February 2, 2011
(Disclaimer: I currently work for a non-profit hospice agency and have not worked for a for-profit agency)
This has been a question that many in the hospice community have asked but the research on the subject has been pretty minimal and most strongly influenced by strong anecdotal experiences from people who have worked on either side of the for-profit (FP) and non-profit (NP) divide. JAMA’s lead article this week ("Association of Hospice Agency Profit Status With Patient Diagnosis, Location of Care, and Length of Stay") is a retrospective study on the demographics of 4705 patients who discharged from hospice (16% discharged alive). (Available free online)
First let’s look at the stats before we get to what I might consider the ‘spin’ placed on this article. The authors looked at a few key variables and found FP hospices had more patients with dementia (OR 2.32) and more patients in nursing homes (OR 1.32). What understandably follows is that FP had longer Length of Stay (LOS) (Median FP – 20 vs NP – 16), not very surprising. Of note they found no difference in number of nursing visits, and more visits for social workers in NP, and more visits for home health aides in FP.
Compared with nonprofit hospice agencies, for-profit hospice agencies had a higher percentage of patients with diagnoses associated with lower-skilled needs and longer lengths of stay.And from that the media concludes:
FP hospice agencies can have margins of 12-16% compared to losses of 2.9-4.4% at NP agencies. along with the growth in FP hospices has Medicare looking into the reimbursement structure. (See chapter 8)
But I think we have to ask ourselves as a field, is this study trying to be more ambitious in its conclusions? And has the media amplified that?
We have to be very careful to examine the assumptions of this article. Nothing in this article tells us why any of the results are true. Maybe it is good to have a different mix of disciplines for patient in nursing homes or with different diagnoses? What is really the best combination for high quality hospice service to be delivered? Ask yourself what the conclusions would have been if there were a lot more SW or nurse visits for patients in a nursing home or with dementia. Would we then clamor and say ‘that is too many visits compared to a patient at home or with cancer!’
The authors note in the comments the many limitations for this study and most importantly I will highlight this paragraph since the majority of the world will stop at the summary and never even read the article:
Finally, and perhaps most importantly, we are unable to assess the relationship between profit status and quality of care. While our study improves on previous research by assessing the number of visits per day by various hospice personnel, we lacked important information on the length of each visit and care provided. For example, we could not distinguish between a home health aide visit that consisted of a 5-minute “check-in” and a half-day visit providing assistance with activities of daily living. We are also unable to determine whether higher rates of home health aide visits in for-profit hospices reflect additional care or substitution of other types of unmeasured (and potentially more expensive) clinical services. We also could not distinguish between visits delivered by registered nurses and licensed vocational nurses; past research suggests that registered nurses, who are more skilled and more expensive, deliver a lower proportion of nursing visits in for-profit hospices vs nonprofit hospices.Now I may be wrong but I imagine there are a lot of NP hospice agencies that may use this article as evidence they will do a better job. But I am not sure this article really supports those conclusions. Maybe I am being cynical and no one in the US hospice world would ever draw those conclusions from this article but if the LA Times is hyping it that way, I can't be too far off. If you are looking for more detailed info I think the MedPAC report (Chapter 8) has a lot more to say about the differences between NP and FP.
I am not someone who will come out to defend profit making and accountability to investors as a good practice model for health services, but I also don’t want to see our field tearing itself apart over these philosophical differences because we did not read the whole article and just depended on the summary.
(UPDATE 11:35PM Here is the response from the NHPCO. Which includes this great quote: "The study authors seem to conclude that such patients are 'lower skill' – the implication being that their care needs are minimal. This reflects a fundamental misunderstanding of the important unmet needs for persons dying from dementia. A person dying from dementia may still experience pain," remarked noted researcher Joan Teno, MD, MS, of Brown University and a member of the NHPCO board.") (By the way, I will leave a lot of leeway for comments on this article, but I ask that you be civil and support your points well.)
Wachterman, M., Marcantonio, E., Davis, R., & McCarthy, E. (2011). Association of Hospice Agency Profit Status With Patient Diagnosis, Location of Care, and Length of Stay JAMA: The Journal of the American Medical Association, 305 (5), 472-479 DOI: 10.1001/jama.2011.70
Wednesday, February 2, 2011 by Christian Sinclair ·