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die"},{"term":"rebecca"},{"term":"recap"},{"term":"reconciliation"},{"term":"reddy"},{"term":"referrals"},{"term":"reframing"},{"term":"rehabilitation"},{"term":"remke"},{"term":"reproduction"},{"term":"request"},{"term":"resolve"},{"term":"resource"},{"term":"respirator"},{"term":"restlessness"},{"term":"rich"},{"term":"riley"},{"term":"ritz"},{"term":"room"},{"term":"rossmassler"},{"term":"rotella"},{"term":"rousseau"},{"term":"rural"},{"term":"sachs"},{"term":"sager"},{"term":"schechtman"},{"term":"schenker"},{"term":"scrambler"},{"term":"secretions"},{"term":"secrets"},{"term":"senna"},{"term":"sexuality"},{"term":"shin"},{"term":"sincliar"},{"term":"sivendran"},{"term":"sparacio"},{"term":"sports"},{"term":"spouse"},{"term":"state"},{"term":"statin"},{"term":"statte"},{"term":"steinberg"},{"term":"stepfamily"},{"term":"steroids"},{"term":"strang"},{"term":"student"},{"term":"supervision"},{"term":"survivorship"},{"term":"systems 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focus on publications not from the major palliative care journals.  It is aimed at health care professionals who work with people nearing the end of life."},"link":[{"rel":"http://schemas.google.com/g/2005#feed","type":"application/atom+xml","href":"https:\/\/www.pallimed.org\/feeds\/posts\/default"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/-\/media?alt=json-in-script\u0026max-results=6"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/search\/label\/media"},{"rel":"hub","href":"http://pubsubhubbub.appspot.com/"},{"rel":"next","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/-\/media\/-\/media?alt=json-in-script\u0026start-index=7\u0026max-results=6"}],"author":[{"name":{"$t":"Drew Rosielle MD"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/04345646798042773615"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"32","height":"32","src":"\/\/3.bp.blogspot.com\/-sdxTTBPb3Kw\/UddApiGn9-I\/AAAAAAAABLE\/mriu5xh44dA\/s113\/ea37b7645cd78e7867d246cd755bc8d4.jpeg"}}],"generator":{"version":"7.00","uri":"http://www.blogger.com","$t":"Blogger"},"openSearch$totalResults":{"$t":"229"},"openSearch$startIndex":{"$t":"1"},"openSearch$itemsPerPage":{"$t":"6"},"entry":[{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-5650195578948513092"},"published":{"$t":"2022-05-13T11:00:00.006-05:00"},"updated":{"$t":"2022-05-13T11:16:20.924-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"games"},{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"tyler"},{"scheme":"http://www.blogger.com/atom/ns#","term":"video games"}],"title":{"type":"text","$t":"The Peril and Privilege of Exploration: A Review of Subnautica"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/blogger.googleusercontent.com\/img\/b\/R29vZ2xl\/AVvXsEg2rODkb-OEWZ9R0fgqrdt6ih5o-f6Rhv-YV8OGfCGw0cy9mY0R8DkP6GVkdU9cq_OrSF3kG6YDvf0CHSmedeI6BseA01K20VBrLMsE19Q0TzpdnOZypYDUZH8DftSOcQQxjbtGBjcdAmF0XhVFnxGDgktli5wdoR4J-0BLoGojXeLj7Bqxe_4\/s1080\/subnautica.png\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"1080\" data-original-width=\"1080\" src=\"https:\/\/blogger.googleusercontent.com\/img\/b\/R29vZ2xl\/AVvXsEg2rODkb-OEWZ9R0fgqrdt6ih5o-f6Rhv-YV8OGfCGw0cy9mY0R8DkP6GVkdU9cq_OrSF3kG6YDvf0CHSmedeI6BseA01K20VBrLMsE19Q0TzpdnOZypYDUZH8DftSOcQQxjbtGBjcdAmF0XhVFnxGDgktli5wdoR4J-0BLoGojXeLj7Bqxe_4\/s320\/subnautica.png\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby Matt Tyler (\u003Ca href=\"https:\/\/twitter.com\/PalliDad\" target=\"_blank\"\u003E@PalliDad\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EIn the survival game Subnautica, you play the role of a space voyager who has crash landed on an aquatic alien planet. You must find a way to escape while navigating the planet’s beautiful but dangerous flora and fauna. Exploration makes the core of Subnautica, and because I am a palliative care doctor, I couldn’t help but draw a parallel to serious illness conversations. Whether exploring shipwrecks and underwater caverns or the emotions and stories of patients, both require curiosity, methodical skill development, and respect for boundaries.  \u003Cbr\u003E\u003Cbr\u003EAny explorer must first and foremost be curious, even in the face of danger. You won’t make progress in Subnautica if you don’t get close to some scary sea monsters. The same is true for serious illness conversations, maintaining curiosity is essential even when encountering a strong emotion like anger. Rather than presuming an angry patient misunderstands the situation, a curious mind wonders about the origins of that anger and the suffering that may be beneath the surface.  The empathy that flows from this curiosity can lead to new levels of understanding. \u003Cbr\u003E\u003Cbr\u003EAnd yet, curiosity alone can only take you so far. At the beginning of Subnautica, your basic equipment will only let you explore a short distance below sea level. To discover the planet’s deepest secrets, you must gradually accumulate the resources necessary to upgrade your diving gear. Likewise, we need more than curiosity to explore the complexities of a patient’s physical, emotional, spiritual, social, and cultural needs in the face of serious illness. It takes time to develop the skillset needed to facilitate these conversations, ideally with observation and feedback from experts.    \u003Cbr\u003E\u003Cbr\u003EEven with the most advanced exploration equipment, there are depths in Subnautica that remain out of reach. There are no physical barriers to show that you’ve reached the world’s edge - that understanding only comes with your fully realized abilities. Similarly, seasoned communicators appreciate that although there are parts of a patient’s story that can be explored with advanced skills, there are always boundaries that must be respected. Though it requires a certain level of expertise to see these invisible walls, noticing their presence is vital for creating a patient-centered   care plan. \u003Cbr\u003E\u003Cbr\u003EUltimately, survival in Subnautica depends not on rebuilding the world to suit your specific needs, but on learning how to work with the world on which you’ve crash landed. Building a relationship with our patients requires the same approach. If we are willing to dive into our patient’s world to understand and support what matters most to them, who knows what beauty can be discovered? \u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003ESubnautica\u003Ca href=\"http:\/\/subnauticagame.com\/\" target=\"_blank\"\u003E\u003C\/a\u003E\u003C\/i\u003E is available to play on PC (Steam), macOS, PlayStation 5, Xbox and Nintendo Switch systems.   \u003Cbr\u003E\u003Cbr\u003EThis post has a companion piece video hosted by Digital Doc Games (embedded below). Check out the \u003Ca href=\"https:\/\/www.youtube.com\/c\/DigitalDocGames\/featured\" target=\"_blank\"\u003EDigital Doc Games YouTube channel hosted by Dr. Amiad Fredman\u003C\/a\u003E for videos on how video games have a huge power to have a positive impact on people's lives. \u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/YTOKNhKzzpY\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/games\"\u003EPallimed posts about games.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/media\"\u003EPallimed posts about culture and media.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/tyler\"\u003EPallimed posts by Dr. Tyler click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EMatt Tyler is a palliative care doctor in Chicago. If he's not watching Cocomelon with his daughters, he is probably playing video games.\u003C\/i\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"The Peril and Privilege of Exploration: A Review of Subnautica\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"How is an underwater survival game like building relationships in clinical work?\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/blogger.googleusercontent.com\/img\/b\/R29vZ2xl\/AVvXsEg2rODkb-OEWZ9R0fgqrdt6ih5o-f6Rhv-YV8OGfCGw0cy9mY0R8DkP6GVkdU9cq_OrSF3kG6YDvf0CHSmedeI6BseA01K20VBrLMsE19Q0TzpdnOZypYDUZH8DftSOcQQxjbtGBjcdAmF0XhVFnxGDgktli5wdoR4J-0BLoGojXeLj7Bqxe_4\/s1080\/subnautica.png\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2022\/05\/the-peril-and-privilege-of-exploration.html\" \/\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/5650195578948513092"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/5650195578948513092"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2022\/05\/the-peril-and-privilege-of-exploration.html","title":"The Peril and Privilege of Exploration: A Review of Subnautica"}],"author":[{"name":{"$t":"Pallimed Editor"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/11358791266969988517"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/blogger.googleusercontent.com\/img\/b\/R29vZ2xl\/AVvXsEg2rODkb-OEWZ9R0fgqrdt6ih5o-f6Rhv-YV8OGfCGw0cy9mY0R8DkP6GVkdU9cq_OrSF3kG6YDvf0CHSmedeI6BseA01K20VBrLMsE19Q0TzpdnOZypYDUZH8DftSOcQQxjbtGBjcdAmF0XhVFnxGDgktli5wdoR4J-0BLoGojXeLj7Bqxe_4\/s72-c\/subnautica.png","height":"72","width":"72"}},{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-1275387959293728133"},"published":{"$t":"2021-11-30T10:00:00.047-06:00"},"updated":{"$t":"2022-05-13T10:56:42.596-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"game"},{"scheme":"http://www.blogger.com/atom/ns#","term":"games"},{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"tyler"},{"scheme":"http://www.blogger.com/atom/ns#","term":"video games"}],"title":{"type":"text","$t":"Say No! More - A Video Game Review"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-hqiTIq5Caek\/YaZJC4ub7lI\/AAAAAAAAAdA\/7aIRqBdKWOUbbfRZmsG4RRdugoi7ziuqQCLcBGAsYHQ\/s1080\/say%2Bno%2Bmore%2B%25281%2529.png\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"1080\" data-original-width=\"1080\" src=\"https:\/\/1.bp.blogspot.com\/-hqiTIq5Caek\/YaZJC4ub7lI\/AAAAAAAAAdA\/7aIRqBdKWOUbbfRZmsG4RRdugoi7ziuqQCLcBGAsYHQ\/s320\/say%2Bno%2Bmore%2B%25281%2529.png\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby Matthew Tyler (\u003Ca href=\"https:\/\/twitter.com\/pallidad\" target=\"_blank\"\u003E@pallidad\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EConsider the last time you said “Yes” to something when you would have preferred to have said “No.” Maybe you worried saying “No” would damage a relationship. Or maybe you didn’t want to put your job at risk. In \u003Ca href=\"https:\/\/www.saynomo.re\/\" target=\"_blank\"\u003EStudio Fizbin’s \u003Ci\u003ESay No! More\u003C\/a\u003E\u003C\/i\u003E you assume the role of a corporate intern on a quest to reclaim their lunch stolen by upper management. You go to battle with your manager, the C-suite, and beyond, wielding the power of a word never-before spoken within the walls of your office. \u003Ci\u003ESay No! More\u003C\/i\u003E demonstrates in an over-the-top fashion how being able to say “No” can be a positive. \u003Cbr\u003E\u003Cbr\u003EAlthough silly on the surface, \u003Ci\u003ESay No! More\u003C\/i\u003E addresses the matter of social conditioning. From the moment we are born, we are taught to associate the word “Yes” with being agreeable and “No” with being disagreeable. As we age, our desire to be perceived as agreeable leads us to answer “Yes” to almost any question, even when it works against our best interests. As a facilitator of serious illness discussions, I am always looking for a way to frame questions so that the person feels comfortable answering in a way that honors their genuine selves. I realize people will often reflexively answer “Yes” and so I will rework questions to remove the onus of answering “No.”  \u003Cbr\u003E\u003Cbr\u003ESharing serious news with a patient requires an environment conducive to discussion, and a big part of that is getting the timing right. A mindful clinician might first ask the patient “Is this a good time to talk?” but this phrasing risks receiving that reflexive “Yes” whether it’s actually a good time or not. We can work around this dynamic by instead asking “Is this a \u003Ci\u003Ebad\u003C\/i\u003E time to talk?” That way, the patient can give a “Yes” and will follow up with when it would be a better time, or they reply with a “No” that allows them to feel ownership of the conversation that follows. Timing is equally important when calling a family on the phone (where many serious conversations have been taking place these days). I often find clinicians diving in with difficult news the moment they hear “Hello” on the other end of the line. The obvious problem is that the person receiving the call could be in the middle of an important meeting or stuck driving in traffic. Asking “Is this a bad time?” disrupts the autopilot responses so common on distracted phone calls and creates the opportunity to either say “Yes” in a way that protects their needs in the moment or say “No” in a way that helps shift their focus to the conversation at hand. \u003Cbr\u003E\u003Cbr\u003EClinicians wishing to address questions of life prolonging therapy will often ask their patients questions like, “Do you still want us to do everything?” or “Would you like to go home?” Both questions can be problematic as they bias towards an affirmative response. Experts in serious illness communication recommend asking patients about what matters most to them before jumping into choices. Once the patient’s values are made explicit, we can pose a question that necessitates introspection and a prioritization of values regardless of whether the answer is “Yes” or “No.” That may sound something like this: “I am hearing that spending as much time at home with your family is very important to you, but that you are also interested in this clinical trial. Would you be willing to risk that time at home for the chance to extend your life?” In this case, “No” allows the patient to establish clear boundaries on treatment to preserve what they value most, whereas “Yes” makes explicit the hierarchy of their priorities to help the clinician offer their best advice on next steps. \u003Cbr\u003E\u003Cbr\u003EPalliative care aims to help patients take control of their lives in the context of a serious illness. Creating space for patients to say “No” when needed is one way to foster that sense of control. Next time you need to have an important conversation with someone, consider how that discussion may be enriched by giving them the opportunity to \u003Ci\u003ESay No! More\u003C\/i\u003E. \u003Cbr\u003E\u003Cbr\u003EThis post has a companion piece video hosted by Digital Doc Games (embedded below). Check out the \u003Ca href=\"https:\/\/www.youtube.com\/c\/DigitalDocGames\/featured\" target=\"_blank\"\u003EDigital Doc Games YouTube channel hosted by Dr. Amiad Fredman\u003C\/a\u003E for videos on how video games have a huge power to have a positive impact on people's lives. \u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/OMr3kgOQF64\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003ESay No! More\u003Ca href=\"https:\/\/www.saynomo.re\/\" target=\"_blank\"\u003E\u003C\/a\u003E\u003C\/i\u003E is available to play on PC (Steam), iOS and Nintendo Switch systems. \u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/ZqggUZB-KTs\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/games\"\u003EPallimed posts about games.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/media\"\u003EPallimed posts about culture and media.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/tyler\"\u003EPallimed posts by Dr. Tyler click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EMatt Tyler is a palliative care doctor in Chicago. If he's not watching Cocomelon with his daughters, he is probably playing video games.\u003C\/i\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cb\u003EReferences\u003C\/b\u003E\u003Cbr\u003E\u003Cbr\u003E1 Voss, C., Raz, T. (2017). \u003Ca href=\"https:\/\/bookshop.org\/books\/never-split-the-difference-negotiating-as-if-your-life-depended-on-it\/9780062407801\" target=\"_blank\"\u003ENever split the difference: Negotiating as if your life depended on it\u003C\/a\u003E. Random House Business Books \u003Cbr\u003E\u003Cbr\u003E2 Ury, W. (2007). \u003Ca href=\"https:\/\/www.goodreads.com\/book\/show\/99401.The_Power_of_a_Positive_No\" target=\"_blank\"\u003EThe power of a positive No: How to say No and still get to Yes\u003C\/a\u003E. New York: Bantam Books. \u003Cbr\u003E\u003Cbr\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"Say No! More - A Video Game Review\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"In a world where we are constantly being pressured to say “Yes,” saying “No” represents control over one’s own life.\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/1.bp.blogspot.com\/-hqiTIq5Caek\/YaZJC4ub7lI\/AAAAAAAAAdA\/7aIRqBdKWOUbbfRZmsG4RRdugoi7ziuqQCLcBGAsYHQ\/s320\/say%2Bno%2Bmore%2B%25281%2529.png\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2021\/11\/say-no-more-video-game-review.html\" \/\u003E\u003Cbr\u003E\u003Cbr\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/1275387959293728133"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/1275387959293728133"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2021\/11\/say-no-more-video-game-review.html","title":"Say No! More - A Video Game Review"}],"author":[{"name":{"$t":"Pallimed Editor"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/11358791266969988517"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/1.bp.blogspot.com\/-hqiTIq5Caek\/YaZJC4ub7lI\/AAAAAAAAAdA\/7aIRqBdKWOUbbfRZmsG4RRdugoi7ziuqQCLcBGAsYHQ\/s72-c\/say%2Bno%2Bmore%2B%25281%2529.png","height":"72","width":"72"}},{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-1359444243940567925"},"published":{"$t":"2021-07-14T13:00:00.012-05:00"},"updated":{"$t":"2022-05-13T10:56:42.596-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"covid"},{"scheme":"http://www.blogger.com/atom/ns#","term":"game"},{"scheme":"http://www.blogger.com/atom/ns#","term":"games"},{"scheme":"http://www.blogger.com/atom/ns#","term":"grief"},{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"palliative care"},{"scheme":"http://www.blogger.com/atom/ns#","term":"pandemic"},{"scheme":"http://www.blogger.com/atom/ns#","term":"tyler"},{"scheme":"http://www.blogger.com/atom/ns#","term":"video games"}],"title":{"type":"text","$t":"How Spiritfarer Helped Me Through the Pandemic"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-Hn4cnedknPI\/YO5nb4PfrVI\/AAAAAAAAAbs\/Fban3rLpokspKYGjjCUyq8zqGYCEXWK8ACLcBGAsYHQ\/s1080\/What%2BRemains%2Bof%2BEdith%2BFinch.png\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"1080\" data-original-width=\"1080\" src=\"https:\/\/1.bp.blogspot.com\/-Hn4cnedknPI\/YO5nb4PfrVI\/AAAAAAAAAbs\/Fban3rLpokspKYGjjCUyq8zqGYCEXWK8ACLcBGAsYHQ\/s320\/What%2BRemains%2Bof%2BEdith%2BFinch.png\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby Matthew Tyler (\u003Ca href=\"https:\/\/twitter.com\/PalliDad\" target=\"_blank\"\u003E@PalliDad\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EDuring what can only be described as a challenging year, I found Thunderlotus’s game \u003Ci\u003E\u003Ca href=\"https:\/\/thunderlotusgames.com\/spiritfarer\/\" target=\"_blank\"\u003ESpiritfarer\u003C\/a\u003E\u003C\/i\u003E just in the nick of time. In this “cozy management game about dying,” you assume the role of a young woman named Stella who is charged with shuttling spirits to the gates of the afterlife. Unexpectedly, \u003Ci\u003ESpiritfarer\u003C\/i\u003E served as both an escape from and means of processing my experience as a healthcare worker during the pandemic. \u003Cbr\u003E\u003Cbr\u003EFrom top to bottom, \u003Ci\u003ESpiritfarer\u003C\/i\u003E exudes tranquility. The animations are bright and vibrant, and  the music is soothing yet melancholy, invoking nostalgia for younger innocent days. With this backdrop, you spend your time in game managing the physical and emotional needs of your passengers. This entails gathering materials to upgrade your boat’s ability to reach more distant islands, constructing customized quarters to accommodate your growing roster of spirits, and cooking meals uniquely suited to each passenger’s preferences. I was especially delighted to learn I could hug passengers to boost their mood, though sometimes they will decline your offer - bonus points to the devs for promoting autonomy! Your efforts are reflected in the mood of each spirit - as it improves they share more about their lives. Ultimately, each story arc culminates in a heartfelt goodbye at the gate to the afterlife. For most of the spirits, at least. \u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-bfPVcO8gN3M\/YO5pYp3fnGI\/AAAAAAAAAb0\/8LU5Vyb5Xe4YZ419-XxONEPHTTgdA1vpQCLcBGAsYHQ\/s960\/Spiritfarer_-_Gwen_Trailer.jpg\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"540\" data-original-width=\"960\" src=\"https:\/\/1.bp.blogspot.com\/-bfPVcO8gN3M\/YO5pYp3fnGI\/AAAAAAAAAb0\/8LU5Vyb5Xe4YZ419-XxONEPHTTgdA1vpQCLcBGAsYHQ\/s320\/Spiritfarer_-_Gwen_Trailer.jpg\"\/\u003E\u003C\/a\u003E\u003C\/div\u003E\u003Cbr\u003E\u003Cbr\u003EOne day, I was passing by the home of one of my favorite companions and saw the outside had been covered with flowers. My stomach lurched. Flowers only appeared after a spirit had passed through the gate, but how could this spirit already be gone? I hadn’t finished their storyline or said goodbye. What kind of closure was that? \u003Cbr\u003E\u003Cbr\u003EAt that moment, I was flooded with memories of conversations where I had to tell someone that their loved one was dying from COVID. Since our hospital restricted visitors I never knew the faces of these family members, just their tortured voices as I broke the terrible news by phone. I did this over and over again every day for what felt like an eternity. There were no proper goodbyes for these families. There was no closure, because how could there be? The breakneck pace someone could go from healthy to dying was impossible to wrap their heads around. It was impossible to wrap my head around it too. \u003Cbr\u003E\u003Cbr\u003EIn palliative care, we provide the medical knowledge necessary to help patients and families prepare for the future. We don’t talk about how that knowledge helps clinicians cope as well. Understanding how an illness progresses gives us mental schema to process the suffering to which we must bear witness. Yes, it’s awful to tell someone that the last line of cancer treatment didn’t work. But because we know the trajectory of metastatic cancer, it’s a conversation we mentally prepare to have at some point. There was no pre-existing narrative for COVID to emotionally brace ourselves for what was coming. So while I worked hard to navigate the devastation in the most optimal (or least terrible) way, I simultaneously resented the need. None of these people were supposed to be dying in the first place. \u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003ESpiritfarer\u003C\/i\u003E was a gentle nudge to loosen my grip on how I think the future is “supposed to” look. It reminded me that, scale aside, COVID does not hold a monopoly on unanticipated loss in this world. Nor does working adjacent to death afford any control over it. Though the lesson goes deeper than that. Even if we can’t control how or when someone’s story ends, we are still encouraged to play our role in it. We keep working to discover our companion’s favorite dish. We take a moment to embrace them when they are feeling low. We hold space to listen to their stories and what is most important to them. \u003Ci\u003ESpiritfarer\u003C\/i\u003E drives home that the inability to control an outcome does not mean we can’t be active participants in the process. And ultimately, taking care of our community is how we shape our future. So we chart the best course we can, and let the open water take us. \u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003ESpiritfarer\u003C\/i\u003E is available to play on \u003Ca href=\"https:\/\/thunderlotusgames.com\/spiritfarer\/\" target=\"_blank\"\u003EPC (Steam), Xbox, Playstation and Nintendo Switch\u003C\/a\u003E systems. \u003Cbr\u003E\u003Cbr\u003EThis post has a companion piece video narrated by Dr. Matt Tyler and hosted by Digital Doc Games (embedded below). Check out the \u003Ca href=\"https:\/\/www.youtube.com\/c\/DigitalDocGames\/featured\" target=\"_blank\"\u003EDigital Doc Games YouTube channel\u003C\/a\u003E hosted by Dr. Amiad Fredman for videos on how video games have a huge power to have a positive impact on people's lives. \u003Cbr\u003E\u003Cbr\u003E \u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/PRLvpkP_ANQ\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/Xu4JHmcfrtw?controls=0\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/grief\"\u003EPallimed posts about grief.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/covid\"\u003EPallimed posts about the experience with COVID-19.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/tyler\"\u003EPallimed posts by Dr. Tyler click here.\u003C\/a\u003E\u003Cbr\u003EFor more Pallimed posts on \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/video%20games\" target=\"_blank\"\u003Evideo games, click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EMatt Tyler is a palliative care doctor in Chicago. If he's not watching Cocomelon with his daughters, he is probably playing video games or making \u003Ca href=\"https:\/\/www.tiktok.com\/@pallidad?_d=secCgYIASAHKAESMgowgwzhy7W1EsPN1Nh2pUMIddn1wvREg0j6yyBBJ76O8ZsGO7d80%2BzKIOda93yPpfIhGgA%3D\u0026amp;language=en\u0026amp;preview_pb=0\u0026amp;sec_user_id=MS4wLjABAAAA7-9ruKPrYrM3-EozY28i1X0XH8vFJVD5b15Cn1EapcyLD33SqG4qSHj2ttXXxqrW\u0026amp;share_item_id=6933597602348797189\u0026amp;share_link_id=BADC1D5C-E16A-43EF-BD9D-CD97D21F4C44\u0026amp;timestamp=1614356071\u0026amp;tt_from=twitter\u0026amp;u_code=dh23cf6kk0g28i\u0026amp;user_id=6927074031583200262\u0026amp;utm_campaign=client_share\u0026amp;utm_medium=ios\u0026amp;utm_source=twitter\u0026amp;source=h5_m\" target=\"_blank\"\u003Epalliative care skits on TikTok.\u003C\/a\u003E\u003C\/i\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"How Spiritfarer Helped Me Through the Pandemic\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"The video game Spiritfarer has many fans in palliative care. Find out why it should be one to play.\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/1.bp.blogspot.com\/-Hn4cnedknPI\/YO5nb4PfrVI\/AAAAAAAAAbs\/Fban3rLpokspKYGjjCUyq8zqGYCEXWK8ACLcBGAsYHQ\/s1080\/What%2BRemains%2Bof%2BEdith%2BFinch.png\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2021\/07\/how-spiritfarer-helped-me-through.html\" \/\u003E\u003Cbr\u003E\u003Cbr\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/1359444243940567925"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/1359444243940567925"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2021\/07\/how-spiritfarer-helped-me-through.html","title":"How Spiritfarer Helped Me Through the Pandemic"}],"author":[{"name":{"$t":"Pallimed Editor"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/11358791266969988517"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/1.bp.blogspot.com\/-Hn4cnedknPI\/YO5nb4PfrVI\/AAAAAAAAAbs\/Fban3rLpokspKYGjjCUyq8zqGYCEXWK8ACLcBGAsYHQ\/s72-c\/What%2BRemains%2Bof%2BEdith%2BFinch.png","height":"72","width":"72"}},{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-6088895933707086442"},"published":{"$t":"2021-06-14T15:01:00.001-05:00"},"updated":{"$t":"2021-06-15T07:43:21.249-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"sinclair"},{"scheme":"http://www.blogger.com/atom/ns#","term":"The profession"}],"title":{"type":"text","$t":"Two Ways to Share your Palliative Care and Hospice Stories"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-8-CTeZpJ2HA\/YMezc7iPKvI\/AAAAAAADFCg\/6NaTmr5yWnU4PjV6NsfSaebTwZam72rHwCLcBGAsYHQ\/s1600\/E3m77Q9WUAUaq4m.jpg\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"900\" data-original-width=\"1600\" src=\"https:\/\/1.bp.blogspot.com\/-8-CTeZpJ2HA\/YMezc7iPKvI\/AAAAAAADFCg\/6NaTmr5yWnU4PjV6NsfSaebTwZam72rHwCLcBGAsYHQ\/s320\/E3m77Q9WUAUaq4m.jpg\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby Christian Sinclair (\u003Ca href=\"https:\/\/twitter.com\/ctsinclair\" target=\"_blank\"\u003E@ctsinclair\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EThis past few days, I came across two great opportunities that I wanted to share with a wider audience of hospice and palliative care clinicians. \u003Cbr\u003E\u003Cbr\u003EFirst is the podcast and radio show, Radiolab. I've always appreciated the nuance and simplicity the creators can bring to complex issues. They are looking for voice memos from people who work in end-of-life care. They are also looking for patients and families who have been impacted by this work. All you have to do is record a 60-seconds or less voice memo and email it to wnycradiolab@gmail.com. Make sure to include your name, city, and your position or connection to the work. For the official ask see the graphic on this post or \u003Ca href=\"https:\/\/twitter.com\/Radiolab\/status\/1403359388983824391\" target=\"_blank\"\u003Ethis link on Twitter. \u003C\/a\u003E Share it with your teams! \u003Cbr\u003E\u003Cbr\u003ESecond is a project by Dr. Kayla Sheehan, \u003Ca href=\"https:\/\/www.pallimed.org\/2018\/09\/the-future-of-hospice-and-palliative.html\" target=\"_blank\"\u003Ewho has written for Pallimed before\u003C\/a\u003E. She is looking for hospice and palliative care physicians to share their origins stories on how they discovered this work. The answers are intended to be anonymous, so share as much as you feel comfortable. The link is here - \u003Ca href=\"https:\/\/dk9n3b78ef9.typeform.com\/to\/yCxDYZzR\" target=\"_blank\"\u003Ehttps:\/\/dk9n3b78ef9.typeform.com\/to\/yCxDYZzR\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/The%20profession\"\u003EPallimed posts about the profession, click here.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/sinclair\"\u003EPallimed posts by Dr. Sinclair, click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EChristian Sinclair, MD, FAAHPM (@ctsinclair) is editor of Pallimed, a former hospice medical director and current outpatient palliative care physician at the University of Kansas Cancer Center. He has a experiential degree in Social Media and Health Care Marketing from the school of life. \u003C\/i\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"Two Ways to Share your Palliative Care and Hospice Stories\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"Share your stories and inform the world about palliative care!\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/1.bp.blogspot.com\/-8-CTeZpJ2HA\/YMezc7iPKvI\/AAAAAAADFCg\/6NaTmr5yWnU4PjV6NsfSaebTwZam72rHwCLcBGAsYHQ\/s1600\/E3m77Q9WUAUaq4m.jpg\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2021\/06\/two-ways-to-share-your-palliative-care.html\" \/\u003E\u003Cbr\u003E\u003Cbr\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/6088895933707086442"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/6088895933707086442"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2021\/06\/two-ways-to-share-your-palliative-care.html","title":"Two Ways to Share your Palliative Care and Hospice Stories"}],"author":[{"name":{"$t":"Christian Sinclair"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/14685043408496367587"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/1.bp.blogspot.com\/-8-CTeZpJ2HA\/YMezc7iPKvI\/AAAAAAADFCg\/6NaTmr5yWnU4PjV6NsfSaebTwZam72rHwCLcBGAsYHQ\/s72-c\/E3m77Q9WUAUaq4m.jpg","height":"72","width":"72"}},{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-8280098735761496348"},"published":{"$t":"2021-04-06T19:00:00.006-05:00"},"updated":{"$t":"2021-04-07T22:48:33.374-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"comics"},{"scheme":"http://www.blogger.com/atom/ns#","term":"dietz"},{"scheme":"http://www.blogger.com/atom/ns#","term":"grief"},{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"television"}],"title":{"type":"text","$t":"What Is Grief, If Not Love Persevering?:  A Palliative Perspective On WandaVision"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-GZ1j4lCOu98\/YGtWHxc7kXI\/AAAAAAAAAaA\/iXH-Q6glGEkB6THUxlbq2qxuQkTkiAbUgCLcBGAsYHQ\/s1080\/pallimed%2Bwandavision.png\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"1080\" data-original-width=\"1080\" src=\"https:\/\/1.bp.blogspot.com\/-GZ1j4lCOu98\/YGtWHxc7kXI\/AAAAAAAAAaA\/iXH-Q6glGEkB6THUxlbq2qxuQkTkiAbUgCLcBGAsYHQ\/s320\/pallimed%2Bwandavision.png\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby SarahScott B. Dietz (\u003Ca href=\"https:\/\/twitter.com\/SDietzMD\" target=\"_blank\"\u003E@SDietzMD\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EWARNING: THIS POST CONTAINS SIGNIFICANT SPOILERS FOR \u003Ci\u003EWANDAVISION\u003C\/i\u003E.  \u003Cbr\u003E\u003Cbr\u003EIn January, \u003Ca href=\"https:\/\/www.disneyplus.com\/series\/wandavision\/4SrN28ZjDLwH\" target=\"_blank\"\u003E\u003Ci\u003EWandaVision\u003C\/i\u003E released on Disney+\u003C\/a\u003E, promising a weekly serial centered around two romatincally involved and familiar Marvel characters, Wanda Maximoff (aka Scarlet Witch) and Vision. The advertisements showed a black and white, vintage look to the show, and gave few clues as to exactly how it would tie in with the rest of the \u003Ca href=\"https:\/\/en.wikipedia.org\/wiki\/Marvel_Cinematic_Universe\" target=\"_blank\"\u003EMarvel Cinematic Universe\u003C\/a\u003E. Fans were intrigued for many reasons, chief among them being that the last time we saw Vision, \u003Ca href=\"https:\/\/www.youtube.com\/watch?v=5sAF8q0_FqE\" target=\"_blank\"\u003Ehe was dead.\u003C\/a\u003E (CW-Superhero violence\/death) \u003Cbr\u003E\u003Cbr\u003EI dove into \u003Ci\u003EWandaVision\u003C\/i\u003E like many fellow geeks: remote in hand, rewinding to scrutinize frames for clues as to what the \"Big Story\" was, and trying to solve the mystery before they revealed all. My Nick At Nite viewings of \u003Ci\u003EMy Three Sons\u003C\/i\u003E and \u003Ci\u003EPatty Duke\u003C\/i\u003E provided ample cultural references for those first few episodes, and my Marvel lore was at least adequate. But where was it all headed? \u003Cbr\u003E\u003Cbr\u003ESomewhere around the third or fourth episode, it hit me like a vibranium baseball bat. \u003Ci\u003EWandaVision\u003C\/i\u003E is a study on grief, loss, and mourning, in layers and layers. I took to Twitter, as one does, noting that colleagues in palliative medicine might want to keep an eye on the show.  A friend replied, asking why I would think so.  \u003Cbr\u003E\u003Cbr\u003E“It’s Wanda, it’s a giant grief bubble for her. She’s doing this out of grief,” I replied. \u003Cbr\u003E\u003Cbr\u003E\"I see it now,” he said, “It’s like superhero complicated grief.” \u003Cbr\u003E\u003Cbr\u003EComplicated grief is what happens when the symptoms of loss and mourning do not begin to subside over time, instead worsening and becoming more intense. People struggling with complicated grief become caught up in their emotional turmoil, and the normal healing process is stalled. They dwell in a world colored by their loss, and may seek out items, locations, or sensations that make them feel proximity to the person they have lost.\u003Csup\u003E1\u003C\/sup\u003E\u003Cbr\u003E\u003Cbr\u003ESuperhero complicated grief is, in other words, a perfect explanation for trapping an entire town of innocent people in order to build a perfect happy sitcom life with your deceased beloved.  \u003Cbr\u003E\u003Cbr\u003EWhile Wanda is the focus of the story, every character in this series is processing grief stemming from the events in \u003Ci\u003E\u003Ca href=\"https:\/\/marvelcinematicuniverse.fandom.com\/wiki\/Avengers:_Infinity_War#Plot\" target=\"_blank\"\u003EAvengers: Infinity War\t\u003C\/a\u003E\u003C\/i\u003E and \u003Ci\u003E\u003Ca href=\"https:\/\/marvelcinematicuniverse.fandom.com\/wiki\/Avengers:_Endgame\" target=\"_blank\"\u003EAvengers: Endgame\u003C\/a\u003E\u003C\/i\u003E, most specifically \u003Ca href=\"https:\/\/marvelcinematicuniverse.fandom.com\/wiki\/Snap\" target=\"_blank\"\u003Ethe “Snap” in which Thanos exterminated half of all life in the universe\u003C\/a\u003E. Fifty percent of the population disintegrates in place, in front of their helpless loved ones, only to reappear in exactly the same place five years later. In the hospital in Episode 4, we get a window into the chaos, tension, and anxiety in the moments as people return after five years. Is the man shoving his way through the hallway desperate to call his wife because he is just returning, or is he hoping to hear her voice again for the first time in half a decade? A key character, Monica Rambeau is shown reappearing in the same room where she was with her mother 5 years earlier. Only now her mother is not there in the hosptial bed, and Monica finds out that her mother died in the 5 years she had been 'gone.' \u003Cbr\u003E\u003Cbr\u003EIn Episode 6, Hayward, a main antagonist, growls at Monica that it was so easy for the ones who vanished, they have no idea how hard it was, how much pain those left behind suffered. Even his pain and, yes, grief, is manifest in that short outburst. (The next bit about Monica not having the stomach to sit with her dying mother, though, that’s just an inexcusable snark.) \u003Cbr\u003E\u003Cbr\u003EMonica’s loss is also heightened by having been disintegrated by the \"Snap\", and the isolation that she feels as a result. While Monica's mother may have died surrounded by loved ones, Monica was unable to be near her mother, to hold her hand or comfort her in her last moments. Monica has to find her own closure without the benefit of those final good-byes. For too many families, that scenario may hit close to home this year, as COVID-related visitation restrictions have limited our ability to be present with each other, even in times of great need. \u003Cbr\u003E\u003Cbr\u003EIn the midst of all the grief processing and mourning on screen, I appreciated the reference to Vision’s advance directives. I found it satisfying that going against his stated wishes not to be re-animated or used as a weapon was presented as proof of serious transgression. It does make me wonder what the contents of an Avenger’s advance directive would look like. Do they have a standard order form? Does it include circumstances in which resurrection would be acceptable?  \u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EWandaVision\u003C\/i\u003E’s executive producer and head writer, Jac Shaeffer, \u003Ca href=\"https:\/\/deadline.com\/2021\/03\/wandavision-series-finale-interview-jac-schaeffer-dr-strange-2-1234709749\/amp\/\" target=\"_blank\"\u003Ehas shared that they set out to build Wanda’s story arc on the stages of grief\u003C\/a\u003E: denial, anger, bargaining, depression, and finally acceptance. (2) In retrospect, it’s easy to see that progression. Early in the season, Wanda is perky, the problems are light, and she is cheerfully in denial. We see her sink deep into depression, her kids worried about her. Is there anyone who has gone through the grieving process who did not sympathize on some level with the exploding Wanda, energy radiating out away from her in a messy, undirected eruption of frustration and angry sadness? \u003Cbr\u003E\u003Cbr\u003EIn the midst of a brutal tour of Wanda’s memories and many losses, it is Vision who crystalizes the essence of our journey: “What is grief, if not love persevering?” To lose someone we have lost does not erase the love we have felt for them, it simply moves the object of our love out of reach. Grief is the space left behind, and it is the work of loving someone who is gone. \u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/AKKr1zCSZEQ\" title=\"YouTube video player\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003EOne of the most moving moments of the show for me was in the very end, when Wanda and Vision were saying goodbye to their boys, and to each other. There was a genuine sweetness to it, tenderness in a scene that could easily be overwrought. It was the superhero version of a farewell I have seen in my practice, occurring in deeply religious families. It is a mix of emotion found in someone with a deeply held belief that they will surely see their beloved again, someday — certain faith that this will happen, blended with uncertainty of what exactly it might look like, and when. Sadness for the parting, even as they trust it will not be forever.  \u003Cbr\u003E\u003Cbr\u003EI am grateful for \u003Ci\u003EWandaVision\u003C\/i\u003E and the conversations it has sparked about grief, loss, and trauma. Marvel being Marvel, we know that even though we have said our farewells this time, we will be able to see these characters again. I can only hope that it will be in a form that is as thought-provoking and enjoyable as \u003Ci\u003EWandaVision\u003C\/i\u003E has been.  \u003Cbr\u003E\u003Cbr\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/grief\"\u003EPallimed posts about grief.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/media\"\u003EPallimed posts about culture and media.\u003C\/a\u003E\u003Cbr \/\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/dietz\"\u003EPallimed posts by Dr. Dietz click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003ESarahScott B. Dietz, MD practices palliative medicine in western Pennsylvania. She is a life-long geek of many fandoms, and lately has been learning both gardening and how to TikTok. \u003C\/i\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cb\u003EReference\u003C\/b\u003E\u003Cbr\u003E\u003Cbr\u003E1 Shear MK. “Grief and mourning gone awry: pathway and course of complicated grief.” Dialogues Clin Neurosci. 2012 Jun;14(2):119-28. \u003Cbr\u003E\u003Cbr\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"A Palliative Perspective On WandaVision\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"The Dinsey+ show WandaVision, had grief as a major theme. How does pop culture intersect with palliative care?\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/1.bp.blogspot.com\/-GZ1j4lCOu98\/YGtWHxc7kXI\/AAAAAAAAAaA\/iXH-Q6glGEkB6THUxlbq2qxuQkTkiAbUgCLcBGAsYHQ\/s1080\/pallimed%2Bwandavision.png\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2021\/04\/what-is-grief-if-not-love-persevering.html\" \/\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/8280098735761496348"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/8280098735761496348"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2021\/04\/what-is-grief-if-not-love-persevering.html","title":"What Is Grief, If Not Love Persevering?:  A Palliative Perspective On WandaVision"}],"author":[{"name":{"$t":"Pallimed Editor"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/11358791266969988517"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/1.bp.blogspot.com\/-GZ1j4lCOu98\/YGtWHxc7kXI\/AAAAAAAAAaA\/iXH-Q6glGEkB6THUxlbq2qxuQkTkiAbUgCLcBGAsYHQ\/s72-c\/pallimed%2Bwandavision.png","height":"72","width":"72"}},{"id":{"$t":"tag:blogger.com,1999:blog-13495125.post-3519679116252470120"},"published":{"$t":"2021-03-15T16:31:00.008-05:00"},"updated":{"$t":"2022-05-13T10:56:42.597-05:00"},"category":[{"scheme":"http://www.blogger.com/atom/ns#","term":"game"},{"scheme":"http://www.blogger.com/atom/ns#","term":"games"},{"scheme":"http://www.blogger.com/atom/ns#","term":"media"},{"scheme":"http://www.blogger.com/atom/ns#","term":"tyler"},{"scheme":"http://www.blogger.com/atom/ns#","term":"video games"}],"title":{"type":"text","$t":"What Remains of Edith Finch? - A Video Game Review"},"content":{"type":"html","$t":"\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-xbOQW_hxt9Q\/YE_QNWvrq-I\/AAAAAAAAAYo\/YtWCCIgKNBkd2Oisku5H6YRiJ1HjeWR4ACLcBGAsYHQ\/s1080\/What%2BRemains%2Bof%2BEdith%2BFinch_.png\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"1080\" data-original-width=\"1080\" src=\"https:\/\/1.bp.blogspot.com\/-xbOQW_hxt9Q\/YE_QNWvrq-I\/AAAAAAAAAYo\/YtWCCIgKNBkd2Oisku5H6YRiJ1HjeWR4ACLcBGAsYHQ\/s320\/What%2BRemains%2Bof%2BEdith%2BFinch_.png\"\/\u003E\u003C\/a\u003E\u003C\/div\u003Eby Matthew Tyler (\u003Ca href=\"https:\/\/twitter.com\/PalliDad\" target=\"_blank\"\u003E@PalliDad\u003C\/a\u003E) \u003Cbr\u003E\u003Cbr\u003EFortunately for me, the pandemic has not interfered with my life-long hobby: video games. I finally got around to playing \u003Ci\u003EWhat Remains of Edith Finch\u003C\/i\u003E, a game that received high praise for its short but engrossing Lovecraftian-esque narrative. What I experienced was a surprisingly insightful exploration of humanity’s relationship with death.  \u003Cbr\u003E\u003Cbr\u003ECoincidentally, I had just read \u003Ca href=\"https:\/\/www.nytimes.com\/2020\/12\/18\/opinion\/sunday\/coronavirus-death.html\" target=\"_blank\"\u003EBJ Miller’s opinion piece “What is Death?” in The New York Times\u003C\/a\u003E and was struck by the parallels between it and What Remains. This game illustrates how one may “fold death into our lives,” and what can happen when we refuse to do so. As Dr. Miller says, “We really have only two choices: to share life with death or to be robbed by death.”  \u003Ci\u003EWhat Remains\u003C\/i\u003E doubles down on this sentiment by turning tragedy on its head and daring us to find beauty in every story (or video game), no matter how short. \u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EWhat Remains\u003C\/i\u003E centers on a young woman named Edith Finch who returns to her childhood home following the death of her mother. Now the last member of her family, Edith is searching for an explanation for the infamous Finch Family Curse. For reasons unknown, the tragedy of untimely death has stalked the Finch family for countless generations.  \u003Cbr\u003E\u003Cbr\u003E\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-bTN--8laTWQ\/YE_QXIY8yGI\/AAAAAAAAAYs\/xnDtFU7N0YIfpU69ZDmaLhVzVd7rIv4FgCLcBGAsYHQ\/s1280\/image0.jpeg\" style=\"display: block; padding: 1em 0; text-align: center; \"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"720\" data-original-width=\"1280\" src=\"https:\/\/1.bp.blogspot.com\/-bTN--8laTWQ\/YE_QXIY8yGI\/AAAAAAAAAYs\/xnDtFU7N0YIfpU69ZDmaLhVzVd7rIv4FgCLcBGAsYHQ\/s320\/image0.jpeg\"\/\u003E\u003C\/a\u003E\u003C\/div\u003EOver the course of the game, you explore the rooms of her deceased relatives in order to make sense of her family’s misfortune. Browsing journals and photographs of Edith’s deceased relatives momentarily transports you to the moment before each person’s death, allowing you to temporarily see the world through their eyes. A warning: these scenes are brief but intense and include death by suicide. While you do gain information about the circumstances of each family member’s death, many questions are left unanswered.  \u003Cbr\u003E\u003Cbr\u003EWhat I found more captivating than the mystery of the curse was the variety of ways the family copes with terrible loss. The game places particular focus on the narratives of Edith’s mother, Dawn, and Edith’s great-grandmother, Edie. Edie, now in her 90s, has lived in the family home since she and her late husband built it 80 years prior. Over the years she has lost her husband, five children, two grandchildren, and two great-grandchildren within the home. Instead of turning away from this massive heartache, Edie preserves each room as a memorial to celebrate the person that lived inside it. She refuses to repurpose these rooms for new family members, and instead tacks on new rooms to the house whenever needed. As a result, the house takes on a haphazard, other-worldly appearance as if it were a living organism. \u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-OGRvNBmalb4\/YE_Qcf0igCI\/AAAAAAAAAYw\/j-m84mG-fhYvIK3wRX4GA81rJ_4xIizfQCLcBGAsYHQ\/s1280\/image1.jpeg\" style=\"display: block; padding: 1em 0; text-align: center; \"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"720\" data-original-width=\"1280\" src=\"https:\/\/1.bp.blogspot.com\/-OGRvNBmalb4\/YE_Qcf0igCI\/AAAAAAAAAYw\/j-m84mG-fhYvIK3wRX4GA81rJ_4xIizfQCLcBGAsYHQ\/s320\/image1.jpeg\"\/\u003E\u003C\/a\u003E\u003C\/div\u003E\u003Cbr\u003E\u003Cbr\u003EDawn, on the other hand, is terrified of her family’s past and eager to conceal it from her children. Rather than discuss death with her children, she seals off the memorialized rooms and refuses to talk about their relatives. However, as Dawn finds out and as we in palliative care know, it is impossible to insulate loved ones from loss forever. When Dawn dies, Edith is left to uncover her family’s history – and navigate the pain associated with what she finds – entirely on her own. \u003Cbr\u003E\u003Cbr\u003ESo often in palliative and hospice care we bemoan our culture’s aversion to the topic of death and dying. Experiencing \u003Ci\u003EWhat Remains\u003C\/i\u003E and reading its overwhelmingly positive reviews gives me hope that the aversion may not be as strong as we think. On the contrary, it would seem there is a hunger to explore the existential in more ways than we realized -- even if some are slightly unconventional.\u003Cdiv class=\"separator\" style=\"clear: both;\"\u003E\u003Ca href=\"https:\/\/1.bp.blogspot.com\/-iXoqROmK538\/YE_QgOQyv6I\/AAAAAAAAAY4\/asXl91LiROwR_pU7p6aqkzS5x3kkQCyNgCLcBGAsYHQ\/s512\/wroef.jpg\" style=\"display: block; padding: 1em 0; text-align: center; clear: right; float: right;\"\u003E\u003Cimg alt=\"\" border=\"0\" width=\"320\" data-original-height=\"269\" data-original-width=\"512\" src=\"https:\/\/1.bp.blogspot.com\/-iXoqROmK538\/YE_QgOQyv6I\/AAAAAAAAAY4\/asXl91LiROwR_pU7p6aqkzS5x3kkQCyNgCLcBGAsYHQ\/s320\/wroef.jpg\"\/\u003E\u003C\/a\u003E\u003C\/div\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003E“If we lived forever, maybe we'd have time to understand things. But as it is, I think the best we can do is try to open our eyes. And appreciate how strange and brief all of this is.”\u003C\/i\u003E  --Edith Finch \u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003E\u003Ca href=\"http:\/\/www.giantsparrow.com\/games\/finch\/\" target=\"_blank\"\u003EWhat Remains of Edith Finch?\u003C\/a\u003E\u003C\/i\u003E is available to play on PlayStation, Xbox, and Windows (via Steam). \u003Cbr\u003E\u003Cbr\u003E\u003Ciframe width=\"560\" height=\"315\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/4mrx1G26GTQ\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen\u003E\u003C\/iframe\u003E\u003Cbr\u003E\u003Cbr\u003EFor more Pallimed posts on \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/video%20games\" target=\"_blank\"\u003Evideo games, click here.\u003C\/a\u003EFor more \u003Ca href=\"https:\/\/www.pallimed.org\/search\/label\/tyler\"\u003EPallimed posts by Dr. Tyler click here.\u003C\/a\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Ci\u003EMatt Tyler is a palliative care doctor in Chicago. If he's not watching Cocomelon with his daughters, he is probably playing video games or making \u003Ca href=\"https:\/\/www.tiktok.com\/@pallidad?_d=secCgYIASAHKAESMgowgwzhy7W1EsPN1Nh2pUMIddn1wvREg0j6yyBBJ76O8ZsGO7d80%2BzKIOda93yPpfIhGgA%3D\u0026amp;language=en\u0026amp;preview_pb=0\u0026amp;sec_user_id=MS4wLjABAAAA7-9ruKPrYrM3-EozY28i1X0XH8vFJVD5b15Cn1EapcyLD33SqG4qSHj2ttXXxqrW\u0026amp;share_item_id=6933597602348797189\u0026amp;share_link_id=BADC1D5C-E16A-43EF-BD9D-CD97D21F4C44\u0026amp;timestamp=1614356071\u0026amp;tt_from=twitter\u0026amp;u_code=dh23cf6kk0g28i\u0026amp;user_id=6927074031583200262\u0026amp;utm_campaign=client_share\u0026amp;utm_medium=ios\u0026amp;utm_source=twitter\u0026amp;source=h5_m\" target=\"_blank\"\u003Epalliative care skits on TikTok.\u003C\/a\u003E\u003C\/i\u003E\u003Cbr\u003E\u003Cbr\u003E\u003Cmeta name=\"twitter:card\" content=\"summary\" \/\u003E\u003Cmeta name=\"twitter:site\" content=\"@pallimed\" \/\u003E\u003Cmeta name=\"twitter:title\" content=\"What Remains of Edith Finch? - A Video Game Review\" \/\u003E\u003Cmeta name=\"twitter:description\" content=\"Can video games help us explore complex person-centered stories around loss and grief?\" \/\u003E\u003Cmeta name=\"twitter:image\" content=\"https:\/\/1.bp.blogspot.com\/-xbOQW_hxt9Q\/YE_QNWvrq-I\/AAAAAAAAAYo\/YtWCCIgKNBkd2Oisku5H6YRiJ1HjeWR4ACLcBGAsYHQ\/s1080\/What%2BRemains%2Bof%2BEdith%2BFinch_.png\" \/\u003E\u003Cmeta name=\"twitter:url\" content=\"https:\/\/www.pallimed.org\/2021\/03\/what-remains-of-edith-finch-video-game.html\" \/\u003E"},"link":[{"rel":"edit","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/3519679116252470120"},{"rel":"self","type":"application/atom+xml","href":"https:\/\/www.blogger.com\/feeds\/13495125\/posts\/default\/3519679116252470120"},{"rel":"alternate","type":"text/html","href":"https:\/\/www.pallimed.org\/2021\/03\/what-remains-of-edith-finch-video-game.html","title":"What Remains of Edith Finch? - A Video Game Review"}],"author":[{"name":{"$t":"Pallimed Editor"},"uri":{"$t":"http:\/\/www.blogger.com\/profile\/11358791266969988517"},"email":{"$t":"noreply@blogger.com"},"gd$image":{"rel":"http://schemas.google.com/g/2005#thumbnail","width":"16","height":"16","src":"https:\/\/img1.blogblog.com\/img\/b16-rounded.gif"}}],"media$thumbnail":{"xmlns$media":"http://search.yahoo.com/mrss/","url":"https:\/\/1.bp.blogspot.com\/-xbOQW_hxt9Q\/YE_QNWvrq-I\/AAAAAAAAAYo\/YtWCCIgKNBkd2Oisku5H6YRiJ1HjeWR4ACLcBGAsYHQ\/s72-c\/What%2BRemains%2Bof%2BEdith%2BFinch_.png","height":"72","width":"72"}}]}});