Wednesday, September 23, 2015

What does Public Health have to do with Palliative Care?

by Dr. Denise Marshall - Pallium Canada

Today, every area of healthcare has a public health agenda. That is, every area of healthcare except palliative care. Palliative care would benefit from a public health approach by developing a wider community context in which palliative care services can make their contributions. A public health approach takes the responsibility of palliative care from a few highly trained specialists to a community that considers it “everybody’s business.”

Public Health Palliative Care is also known as Health Promoting Palliative Care (HPPC) and was developed as a social movement. The underlying philosophy behind HPPC is the Ottawa Charter for Health Promotion that was established in 1986, including 5 core principles:

Building public policies that support health
Creating supportive environments
Strengthening community action
Developing personal skills
Reorienting health services

HPPC places emphasis on community development and partnerships across all sectors to empower communities, instead of emphasizing the responsibilities of health services as the primary advocate of change. This framework supports those with life limiting illnesses and their families by encouraging, sustaining and resourcing community capacity. The framework also provides opportunities to enhance access to palliative services, which is particularly relevant in Canada where only 16 to 30% of Canadians have access to good quality palliative care.

Compassionate Communities (CC) and Conceptual Clarity 

Download the Report
The Compassionate Cities/Communities model is a theory of practice for HPPC. In fact, HPPC projects are typically described as “Compassionate Communities” projects. The CC model attempts to bridge the gaps between the realities of widespread “experience” of distressing death and “practice.” Previously, these gaps have neglected the social needs of dying or simply ignored it. These gaps include:

Inadequate and inequitable access to integrated, high quality palliative care
Inadequate support for caregivers
Limited and inequitable service capacity across all care settings
Lack of clear accountability for the delivery of palliative care
Lack of system integration

To address these gaps, the CC model emphasizes reforms to the way palliative care is conceptualized, organized and delivered. It treats palliative and end-of-life care as a community responsibility and creates partnerships between the community and services.

Compassionate Communities Projects in Action 

Where do we turn for support of the CC model? What are the next steps to make the CC model a reality in our community? Illuminating and learning about existing international and “made in Canada” CC projects is a great start. Notable CC projects include:

Hospice Friendly Hospitals, Ireland
Frailty index – A global clinical measure of fitness and frailty in elderly people
Compassionate watch – i.e. Neighbourhood watch
Death education elementary schools/hospice partnerships
Spiritual companions
Integration of formal and informal care networks
LTC pubs/beer coasters
Caregiver Day
Airport posters
Die-alogues: Conversations on Life and Death, Thunder Bay

Pallium Canada and Mobilizing your Compassionate Community

Pallium Canada’s professional development opportunities, clinical decision-support tools and e-Learning Essential Approaches to Palliative and End-of-Life care (LEAP) courseware and LEAP Facilitator Training sessions. The LEAP courseware is designed for a generalist-level interprofessional audience - primarily physicians, nurses, pharmacists and social workers. Pallium Canada’s Guiding Principles are to promote interprofessional care, translate and diffuse knowledge, promote active learning, and connect community to local palliative care resources. LEAP is increasing service capacity across care settings through tailor-made, setting-based curriculum, including: LEAP Core, LEAP Mini, LEAP Mini Oncology, LEAP Paramedic, LEAP Long-Term Care, and Taking Ownership.

Learning Resources

Learning resources are intended to bridge existing gaps, increase capacity and enhance access to palliative care. Pallium Canada is increasing capacity and enhancing access to palliative care through the Pallium Canada’s professional development opportunities, clinical decision-support tools and e-Learning resources are intended to bridge existing gaps, increase capacity and enhance access to palliative care. Pallium Canada is increasing capacity and enhancing access to palliative care through the Learning Essential Approaches to Palliative and End-of-Life care (LEAP) courseware and LEAP Facilitator Training sessions. The LEAP courseware is designed for a generalist-level interprofessional audience - primarily physicians, nurses, pharmacists and social workers. Pallium Canada’s Guiding Principles are to promote interprofessional care, translate and diffuse knowledge, promote active learning, and connect community to local palliative care resources. LEAP is increasing service capacity across care settings through tailor-made, setting-based curriculum, including: LEAP Core, LEAP Mini, LEAP Mini Oncology, LEAP Paramedic, LEAP Long-Term Care, and Taking Ownership.

Pallium Canada’s clinical decision-support tools, such as the Pallium Palliative Pocketbook, E-Book, and Resource App, promote best practice palliative and end-of-life care. The soon to be publicly launched Resource App will house clinical decision-support tools, essential conversation tips, national palliative care resources, and a framework for stakeholders to manually upload local, community based resources. 

Educating the General Public

Pallium Canada’s e-Learning resources called Doodles educate the general public and healthcare professionals on topics related to palliative care, including: Advance Care Planning, The Words We Use, Palliative Myths, and the importance of administering palliative care early in the illness trajectory


On October 28th, 2015 Pallium Canada is taking our palliative care initiatives one step further with our Symposium entitled “Mobilizing YOUR Compassionate Community!” Hosted at the Westin Ottawa Hotel, the Symposium will engage participants to adapt, apply, and mobilize the international Compassionate Communities model to Canadian realities. We will learn about the movement, illuminate “made in Canada” CC projects, network with like-minded visionaries, and begin to develop a blueprint to build and support the CC movement in Canada. 

To register, click here and select “Symposium Attendee Only” from the dropdown menu and then check the box next to “Pallium Symposium.” We can’t wait for you to join the Pallium Canada community!
What: #hpm chat on Twitter
When: Wed 9/23/2015 - 9p ET/ 6p PT
Host: Dr. Denise Marshall - Pallium Canada

If you are new to Tweetchats, you do not need a Twitter account to follow along. Try using the search function on Twitter. If you do have a Twitter account, we recommend using, for ease of following.

You can access the transcripts and analytics of #hpm chats through @Symplur. 

Wednesday, September 23, 2015 by Niamh van Meines ·

Friday, September 11, 2015

Thank You Andy Billings

by Christian Sinclair

Our field of palliative care lost one of our great educators when Dr. Andrew Billings died this week. Thankfully, he was a great mentor and teacher to so many, that he will truly live on in the caring hands of so many clinicians impacted by his long years of work. His leadership with his wife, Dr. Susan Block, in creating the Harvard Palliative Care Education and Practice (PCEP) program has extended his teaching influence beyond the Boston streets where he practiced for so many years.

In 2004, while I was finishing up my hospice and palliative medicine fellowship in North Carolina, I was lucky enough to attend the Harvard PCEP program.  Excited to just be near some of the field's luminaries like Billings, Block, Bruera, Christakis, Truog VonGunten, Weissman and others was a big thrill. To then find out that I was assigned to the small group with Andy Billings as the facilitator floored me.

He was extremely approachable as a teacher, which immediately helped set us all on a level playing field. As we discussed communication skills, he would share small insights that would help unlock a different way of hearing the conversation. In the more introspective sessions, he provided safe-space for the small group to discuss our own understanding of spirituality, religion, and our philosophies on life, so we could better care for patients and families.

After PCEP, we kept in touch occasionally by email, and running into each other at AAHPM meetings. I was sometimes concerned I might be a bother to such a busy, accomplished man, yet he always genial and welcoming. He always made me feel welcome.

Thanks Andy, for everything.

Read more about Andrew Billings in his own words in his 2007 reflection on his career in palliative care and hospice or a piece in the New York Times featuring him.

Christian Sinclair is a palliative medicine physician at the University of Kansas Medical Center, where he provides inpatient consultation, and outpatient clinic services. He hopes to be always genial and welcoming, like Andy.

Photo credits: Christian Sinclair, personal collection

Friday, September 11, 2015 by Christian Sinclair ·

Thursday, September 10, 2015

Quality Matters in Palliative Care

by Arif Kamal MD, MHS

Palliative care is at a crossroads. We have for several decades leveraged our tenacity, charisma, and evidence base to transition ourselves from a novel consultative service to the accepted, standard-of-care approach of caring for persons with serious illness and their caregivers. Despite the remarkable integration of our services and care philosophy, we are not immune to the shifting winds of change across all of healthcare. From the upper echelons of healthcare on down, clinicians, administrators, payers, and patients are all evolving they ways they deliver, receive, and evaluate healthcare. Among all the changes and evolutions taking place, one thesis statement summarizes the transformation between the old and new ways: Quality. Now. Matters. And it is how we react to the increasing calls for measuring, reporting, and proving quality of healthcare delivery in specialty palliative care that will dictate the future sustainability and growth of the discipline.

Modern approaches to total quality management depend on a diligent focus by organizations in four key areas: regular implementation of structured quality improvement cycles, transformation to a culture of continuous awareness of service defects, engagement for change by employees across all levels of an organization, and a patient-centric definition of quality that welcomes consumer feedback. Admittedly, these are difficult concepts to master, and harder still to implement. Further, in palliative care, the clinical services we provide are diverse, complex, and demanding. The answers are not always easy, and not often found by leaders outside of our field. Improving the quality of care we deliver is fundamentally the professional responsibility of those who know the discipline from the inside. Although we possess expertise at providing clinical care, developing consultative programs, and growing our field, the fundamental infrastructure to learn, collaborate, and improve our care through an advanced understanding of healthcare quality improvement is missing, and sorely needed.

As a grassroots effort to change this, we at the Global Palliative Care Quality Alliance are hosting the inaugural “Quality Matters Conference” on October 15, 2015. This webinar-based, half-day virtual conference will use short didactic sessions (limit 20 minutes) and open Q and A sessions to address several of these impending changes for our field, and across healthcare. We will discuss topics such as: the national landscape of quality measurement, the Measuring What Matters initiative from AAHPM, evolving reimbursement policies and their links to quality measurement, leadership for change and motivating clinicians, and billing and coding tips for busy clinicians. All the topics center around our theme for the conference, “Innovation through Collaboration,” which highlights the need to band together within the discipline to guide innovations in high-quality palliative care delivery. To emphasize the importance of such education, we will provide complimentary registration and Continuing Medical Education (CME) and Continuing Nursing Education (CNE) through Duke University (register at We hope to provide an informative, collaborative, and engaging environment for palliative care team members of all backgrounds to learn more about palliative care quality.

The collaborative spirit of palliative care is truly one of its greatest strengths. We regularly come together to teach, learn, and grow from each other. We are the model that other disciplines strive to emulate. We look forward to seeing many wonderful colleagues at the upcoming Quality Matters Conference to learn how we can all play a vital role in improving the experience of those with serious illness and their caregivers, one quality improvement initiative at a time.

We will also be talking about quality initiatives in palliative care during the September 16th #hpm chat. We hope you can join us then. Details are below.

Dr Arif Kamal (@arifkamalmd) is an Assistant Professor of Medicine at Duke University. His research is focused on palliative care outcomes, quality, and professional burnout.

What: #hpm chat on Twitter
When: Wed September 16, 2015 - 9p ET/ 6p PT
Host: Dr. Arif Kamal (@arifkamalmd)

Follow @hpmchat on Twitter for all the latest on #hpm chats.

If you are new to Tweetchats, you do not need a Twitter account to follow along. Try using the search function on Twitter. If you do have a Twitter account, we recommend using a chat client like or Tweetdeck for ease of following.

You can access the transcripts and analytics of #hpm chats through @Symplur. 

Thursday, September 10, 2015 by Pallimed Editor ·

Tuesday, August 25, 2015

Why Haven't They Been Listening? An Interview with Zubin Damania, MD aka ZDoggMD

by Michael D. Fratkin

The ground is shifting under our feet as our society seems finally to be looking at the nature of human mortality and the way we care for each other…or don’t…as we complete our lives. Zubin Damania, MD aka ZDoggMD is now part of that conversation since the release of “Ain’t the Way to Die” his first not-so-funny medical parody music video focused on how we so many of us die in the hospital in a not-so-funny way. A hospitalist refugee from burn-out at a big academic center, ZDogg continually reinvents himself as an “off-white rap star” with a passion for saying what needs to be said with growing impact.


 That doesn’t surprise any of us that have been practicing professionals in palliative care and hospice over the last 35 years. We have done our best to share our perspective and to inform our society. And our society has only just now seem to be paying attention. I sat down with ZDogg for an interview to address a question raised by Atul Gawande in an interview before his plenary at the AAHPM Assembly, “…why the hell aren’t people listening to you?”


Michael D. Fratkin, MD is a palliative care physician and founder of Resolution Care, a unique palliative care practice in Northern California. Resolution Care was featured on Pallimed in Dec 2014.

Tuesday, August 25, 2015 by Pallimed Editor ·

Monday, August 24, 2015

Building high quality and lasting hospice programs in rural areas

by John M. Saroyan

Vermont is the sixth smallest in area and the 2nd least populous of the fifty United States. Medicare data from 2013 show that Vermont had among the lowest hospice penetrance rates in the country along with New York, Wyoming, South and North Dakota, and Alaska. While enrollment in hospice has been associated with improved survival for CHF, colon, lung and pancreatic cancer, improved quality of care for persons dying of dementia, and improved mortality outcomes in surviving widowed spouses, I find knowledge of these research findings to be low. And while a sense of comfort and relief for millions of Americans is provided by hospice every year, it is frequently felt to be a service for the imminently dying.

Since beginning my role as Hospice Medical Director for BAYADA Home Healthcare in Vermont and New Hampshire in 2013, I have spoken with health care providers of many disciplines in the region about why hospice utilization may be so low. Hospice practice in rural and remote areas is captured in population based data that can be broken into counties but is poorly represented in hospice and palliative care literature. Its day to day challenges and successes are learned from actual and shared experience.

This #hpm chat encompasses an international group of participants who bring a diversity of experience to the topic of building high quality and lasting hospice programs in rural areas. My aim is to pose questions that will lead us to common ground for building these programs in order to meet the end-of-life needs of our patients, families as well as hospice clinical and administrative staff.

Questions that will be posed during #hpm chat:
  • How is access to hospice care a barrier for patients and families where you live?
  • How is the availability of experienced staff a barrier?
  • Have prescription monitoring programs or pharmacy dispensing practices interfered with your ability to dispense opioids?
Dr Saroyan (@jmsaroyan) is the full-time Hospice Medical Director for BAYADA Home Health Care. He also holds faculty appointments at Geisel School of Medicine, UVM Medical Center, and Columbia University.

What: #hpm chat on Twitter
When: Wed August 26, 2015 - 9p ET/ 6p PT
Host: Dr. John M. Saroyan (@jmsaroyan)

Follow @hpmchat on Twitter for all the latest on #hpm chats.

If you are new to Tweetchats, you do not need a Twitter account to follow along. Try using the search function on Twitter. If you do have a Twitter account, we recommend using, for ease of following.

You can access the transcripts and analytics of #hpm chats through @Symplur. 

Image credit: Vermont Hogback Mountain via Wikimedia (CC license)

Monday, August 24, 2015 by Pallimed Editor ·

Friday, August 21, 2015

The Lies of Hospice Patients

by Lizzy Miles

Hospice and palliative care professionals value honesty. We may be the only people in a patient’s life who speak openly about death and dying. There is no time left for us to speak metaphorically. We do our best to be compassionate when we are direct with our communication. In order to provide the best care possible for our patients, we have to build an open and trusting relationship with them. One might assume that since we are authentic with our patients, they are open and honest with us. We know, though, that this is not always the case. Recently, I wrote about the secrets of hospice patients. This article is a continuation of that thought with a discussion of the lies that hospice patients might tell us.

Before we go on, let's be clear that there is no moral high ground in the suggestion that hospice patients may lie. A lie, according to Webster's Dictionary, is simply "an intentionally false statement." It is my assertion that there are times where patients do make false statements to us, and they have their reasons for not being truthful.

If you are new to hospice and palliative care, you might be surprised to learn that patients might lie. If you have worked in hospice and palliative care for a few years, chances are you are nodding your head as you are reading this, with a recollection of your own patient encounters. I have been thinking about this phenomenon for a few years. As always, my articles are inspired by experiences and lessons I have learned as a hospice social worker.

Why do hospice and palliative care patients lie to us?

Perhaps the best way to answer the “why” is to reframe the question. When might hospice and palliative care patients lie? Patients might lie when they do not feel comfortable with telling us the truth. We have not built up trust so that the patient feels we are on their side. Patients may outright lie or they may lie by omission or understate the truth.

Here are some examples of areas of deception:

Current “bad” habits

There are several reasons why a patient may not be honest to a hospice caregiver about their smoking, drinking or drug habit.
1. Patients expect that their medical provider will tell them to stop what they are doing.
2. There is a fear of judgement/labeling by the medical provider.
3. Patients may not think their habit is the provider’s business.
4. A patient is ashamed or embarrassed by the habit.
5. There may be a perception that a truthful answer will result in an unwanted response from the provider.

Patients are not going to naturally understand why we ask questions about smoking, alcohol and drugs. We ask these questions because these habits can affect their plan of care. All three habits can affect how a patient responds to or metabolizes medication. If a patient is a smoker, we want to ensure that they are safe with their habit, especially if they are on oxygen. Before we ask questions about these habits, it would be helpful for the patient to know why we are asking. If we tell them why we need to know about their habits, we have a better chance of getting an honest answer.

Assessment/visit fatigue

In hospice and palliative care, we are constantly assessing. Every staff member that interacts with the patient is asking the patient questions. At times, the patient gets the same question from different staff members. A barrage of questions can be overwhelming for patients. We need to be mindful of the timing of our visits so that patients have a break in between providers as much as possible.

I had one initial assessment with a patient (Mr. J) which directly followed personal care by the aide and the hospice nurse visit. (Hospice social workers are tasked with conducting an initial assessment within five days, and so our timing can be unfortunate at times.) The patient I was assessing was irritated with his shower because movement hurt and he was in a bad mood when I started talking with him. I could not get a straight, honest answer on any question. He told me he had ten children, when in fact he had none. He refused to tell me what he did for a living. Every other word he said was a swear word. He was not in the mood to talk, and eventually, I gave up trying to win him over and gave him the space that he apparently wanted.

What they really think of us and/or our care

Sometimes our experiences when we are patients ourselves can inform our work. It took me three months to get in to see an opthamologist, and then the day of my visit, there were extensive wait times with no updates or apologies. The whole appointment took 4 hours, although my physician time was only 20 minutes. I was seething inside, yet I never complained. I felt helpless because I really needed to see this specialist. You would think I would be better at self-advocacy since I'm a social worker. Though I never said anything to the doctor, you can bet I told a number of people how awful my experience was. It was then that I realized there might be some of our hospice patients who don’t like us or something we have done, but don’t tell us.

Why am I bringing this up? Because we need to remember that a patient is not always going to tell us directly when they are unhappy about something. Occasionally, one staff member will hear from a patient about their dissatisfaction with another staff member, but I suspect there is more dissatisfaction than we realize. A complaint-free patient does not mean we have a content patient. We need to check in with the patient frequently, and give them the opportunity to direct their care. We do not want to have a situation where a patient is very unhappy and we did not know because they didn’t tell us and we didn’t see it. We need to read body language and we need to read between the lines with what patients say and what they don’t say.

How to build a trusting relationship

How does one build a trusting relationship with a hospice and palliative care patient so they feel comfortable telling the truth? This would be a great question for the #hpm tweetchat, as I am sure that there are lots of ideas. I do not claim to have all the answers, though I have often been told by patients that I am “authentic.”

Here is what I try to do:
• Ask permission for everything. Are you open to chatting? Do you mind if I take notes?
• Acknowledge the personal nature of questions. The reason I am asking is because…
• Take “no” for an answer. If a patient does not want a visit, I leave.
• Ask for permission to return.
• Be mindful of my nonverbal and verbal responses when a patient self-discloses.
• Normalize patient behavior and thoughts as much as possible.

Please do share in the comments your own best practices for building a trusting relationship for patients.

Lizzy Miles, MA, MSW, LSW is a hospice social worker in Columbus, Ohio. Lizzy is best known for bringing the Death Cafe concept to the United States. You can find her on Twitter @LizzyMiles_MSW 

Image credit: No lies, truth - via iStock
Image credit: Building Trust in Health Care - composite by Christian Sinclair for Pallimed

Friday, August 21, 2015 by Lizzy Miles ·

Monday, August 10, 2015

Cases: Opioid-induced hyperalgesia

by Jordan Keen

SM is a 25-year-old female with progressively worsening rhabdomyosarcoma despite multiple rounds of chemotherapy and surgery. She presented to the emergency department with worsening of her chronic tumor-related abdominal pain and new, diffuse pain of the muscles and joints. Family reported she had been experiencing episodes of confusion and hallucinations over the past week. Her home pain regimen of long-acting morphine and as needed oxycodone had been titrated aggressively over the past month in an attempt to control her pain (600mg total daily oral morphine equivalents).

When first evaluated by the palliative care consult service, she was in severe distress. She described severe, 10/10, diffuse pain. On exam there was generalized tenderness of the abdomen, as well as her shoulders, upper legs, and lower back. She was exhibiting myoclonic jerks of her upper extremities every 3-4 seconds. Although she was alert and oriented, she was easily distracted during the exam and required frequent redirection.

Our palliative care team was concerned about opioid-induced hyperalgesia (OIH). Suspicion was high given the paradoxical worsening of her pain despite high doses of opioids and the neuroexcitatory signs and symptoms (myoclonus, confusion, and hallucinations) she was exhibiting. Therefore, it was decided to lower the overall dosage and switch her opioid regimen in an attempt to reverse OIH. Her long-acting morphine was discontinued and replaced with methadone 5mg three times per day. Her as-needed oxycodone dose was reduced from 30mg to 5mg every 4 hours. To control the myoclonus, low dose lorazepam was administered three times per day.

View more cases on Pallimed

Opioid-induced hyperalgesia (OIH) is a rare syndrome of increasing pain, often accompanied by neuroexcitatory effects, in the setting of increasing opioid therapy. Clinicians should consider OIH in patients on high dose opioids or during a period of rapid opioid escalation. While case reports show a wide range of dosages can provoke this syndrome, the majority of patients are on very high doses, often greater than 1000mg oral morphine equivalents per day and typically via parenteral routes (IV and intrathecal). Morphine is by far the most common opiate implicated in OIH. Hydromorphone and oxycodone, members of the same class of opiate as morphine (phenanthrenes), can also cause OIH, but oxymorphone has not yet been reported to cause it. Methadone, a synthetic opioid in the class of diphenylheptanes, and fentanyl, a synthetic opioid in the class of phenylpiperidine, are considered less likely to precipitate OIH.

Existing data suggests that OIH is caused by multiple opioid-induced changes to the central nervous system including:

  • Activation of N-methyl-D-aspartate (NMDA) receptors
  • Inhibition of the glutamate transporter system
  • Increased levels of the pro-nociceptive peptides within the dorsal root ganglia
  • Activation of descending pain facilitation from the rostral ventromedial medulla
  • Neuroexcitatory effects provoked by metabolites of morphine and hydromorphone

OIH can be confused with tolerance as in both cases patients report increased pain on opioids. The two conditions can be differentiated based on the patient’s response to opioids. In tolerance, the patient’s pain will improve with dose escalation. In OIH, pain will worsen with opioid administration. This paradoxical effect is one of the hallmarks of the syndrome. On physical exam, patients are grimacing in pain with moderate-to-severe distress, myoclonus, altered mental status or delirium and often allodynia (pain due to non-painful stimuli, such as light touch).

Typically, if you suspect OIH, you should get a pain or palliative care consultation because it will seem wrong to decrease opiates in a patient in severe pain. Opiate dose reduction and rotation to a synthetic opioid such as fentanyl or methadone is recommended. Methadone has the additional benefit of NMDA antagonism. It is not surprising that methadone has been shown to improve or resolve OIH given the role NMDA activation plays in causing OIH. Adjuvant therapies, such as acetaminophen or neuropathic pain medications, should be considered as they may decrease the need for opioids. Benzodiazepines may be a temporary addition to manage myoclonus as the OIH resolves.

Symptoms of OIH do resolve when patients are treated with the above strategies. However, it can be long and difficult to wean some patients to a low enough level of opioids to stop OIH. Existing literature does not address any long-term consequences of OIH. We hope to see more research on this subject.

Over the next 48 hours in the hospital, her myoclonus improved. Her pain and mental status improved more slowly. It took a week to re-establish control of her pain. At the time of discharge, she rated her pain as 3/10. Her new pain regimen consisted of methadone 10mg three times a day and oxycodone 5mg every 4 hours as needed.

1. Chu, L. Opioid-induced Hyperalgesia in Humans: Molecular Mechanisms and Clinical Considerations. The Clinical Journal of Pain Issue: Volume 24(6), pp 479-496. 2008.

2. Smith, M. Neuroexcitatory Effects Of Morphine And Hydromorphone: Evidence Implicating The 3-GlucuronideMetabolites. Clinical and Experimental Pharmacology and Physiology, 27, pp 524–528. doi: 10.1046/j.1440-1681.2000.03290. 2000.

3. Mao, J. Opioid-induced abnormal pain sensitivity. Current Pain and Headache Reports. Volume 10, Issue 1, pp 67-70. 2006

4. Lee, M et al. A Comprehensive Review of Opioid-Induced Hyperalgesia. Pain Physician 2011; 14:145-161. ISSN 1533- 3159. Open Access PDF

Original Case by Jordan Keen, MD
Case Conferences Editor - Christian Sinclair, MD
University of Pittsburgh Medical Center

Photo Credit: Dunn Harvárr Valley by Asbooth2011 via Wikimedia Commons

Pallimed Case Conference Disclaimer: This post is not intended to substitute good individualized clinical judgement or replace a physician-patient relationship. The case and discussion is published as a means to illustrate important teaching points in healthcare. Patient details may have been changed by Pallimed editors to ensnure anonymity. Links and minor edits are made for clarity and Pallimed editorial standards.

Monday, August 10, 2015 by Pallimed Editor ·

Monday, August 3, 2015

A Palliative Review of Inside Out [Spoilers]

by Jenni Linebarger

“… in the movie, sadness saved all their lives.”
    - Jake Hamilton

I heard these words from a 9-year old at the end of an NPR story on Pixar’s new film Inside Out. (Note: that the audio has more than the webpage written content.) I thought to myself: There is a movie explicitly about emotions? About the importance of what so many deem to be “negative” emotions? What?! I need to see this movie. How can this movie be used within palliative care?

Such sentiments were supported further as I read stories from parents who wrote about the impact watching Inside Out had on their families. One writer notes, Inside Out is a movie in which you see the “beauty and bittersweetness of grief… Deep within the theme of this movie is also the impact that tragedy has on our past memories.”

With these reviews in mind, our palliative care team went to see the movie together recently. The movie lived up to the expectations set for me. I can imagine using the “characters” (emotions) to help explain the mixed feelings encountered in the word of palliative care.

I’m also still smiling at the scene in which Sadness sits down and listens to the life review of an imaginary friend named Bing Bong… She doesn't say much at all, but afterwards he is amazed about how much better he feels. Palliative care anyone?

Jenni Linebarger, MD, MPH, FAAP is a pediatric palliative care physician at Children's Mercy Hospital in Kansas City, MO. 

Image credit: Found via Idle Hands

Monday, August 3, 2015 by Jenni Linebarger ·

Thursday, July 30, 2015

All The Lonely People

Tommy Steel's statue of Eleanor Rigby, Liverpool
 by Kristina Newport

As hospice and palliative medicine practitioners, we have the opportunity to witness the lives and deaths of people from all walks of life. Many people we care for die surrounded by loved ones who are full of memories, pain and grief. Others, however, die alone, or with relationships too strained to bring value. When we care for these people, we learn who they are and become their witnesses. We hear their stories and secrets, as Lizzy Miles MSW discussed in a recent Pallimed post. We witness their end. And we remember.

Uberto Pasolini’s 2015 movie, Still Life, illustrates the life of one person who was serious about remembering. The main character, John May, is a government worker whose job it is to find family members of people who died alone. He works meticulously, exhausting all paths to find someone who cares. If he fails at this task, he shows his own respect by planning and attending funeral services no one else attends. He keeps his own photo album and remembers people he never knew in life.

"Sad Lady" ~Stella Newport, 4 years
I’ve often thought that I should keep a similar record of the patients I’ve met who have died. When I started fellowship, I kept a notebook of names. It started collecting dust by month 2. In practice, I’ve jotted down notes without regularity. Over the years, unique cases stand out, but specific names and stories fade.

The risk of increased numbers of people dying alone has the potential to increase as more people reach their elder years alone. Maria Carney, MD completed a literature review revealing increasing numbers of elderly US citizens without children, nicknamed “elder orphans”. A similar phenomenon is documented in the UK, with estimates that by 2030, two million pensioners in Britain will have no adult children. Both articles discuss the rising need for personal and medical care but they also raise the question: who will remember them?

This is hardly a new concept. We even have a soundtrack, nicely provided by the Beatles in their 1966 song Eleanor Rigby. Although the idea is old, it feels like a valuable and timely concept to consider. What does it mean for us, as providers and as people, to carry these people with us, or not? Particularly when we hold stories no when else knows, with no one to pass them onto? I wonder, what do other providers do to remember? To acknowledge? Is it our job to do the remembering, like John May did? Does that benefit anyone other than the remember-er? In a recent conversation with a hospice social worker, she pointed out the value in getting to know her patients, if for no other reason but that the patient will feel they will be remembered.


Kristina Newport MD (@kbnewport) practices Hospice and Palliative Medicine in Lancaster, PA where she also spends time running after her children, 4 and 6.

Photo Credit: Tommy Steel's Staue of Elanor Rigby via Wikimedia
Illustration Credit: Sad People by Stella Newport, all rights reserved

Thursday, July 30, 2015 by Kristina Newport ·

Sunday, July 26, 2015

The Art of Dying Well (Ars Moriendi)

by Amy Clarkson

In the success driven society that we live in, I’m surprised there is so little out there about a successful dying experience. There are hundreds of books about how to be a successful parent, a successful spouse, a successful employee or employer. There are success how to’s for education, healthcare, businesses, nonprofits and churches.

Likely, this absence of material about successful dying comes from the link of success to achievement. No one feels confident linking death with achievement. However, what about the idea of dying well? Is this something individually or culturally we should strive for?

Dying well sits more comfortably with us, as we can generalize a bit more about what dying well means. Usually it’s when there is an absence of suffering, when the timing coincides with loved ones presence, when symptoms are controlled and the environment is peaceful; things that at first glance seem out of the control of the person who is dying.

While we may hesitate to discuss what dying well means, historically this was not so. In the 1400’s at the behest of the Roman Catholic Church a booklet was published called “Ars Moriendi” (The Art of Dying) and was the quintessential book on preparing to die, and dying well. It was widely circulated, with over 100 editions and translations into most European languages.

The book spiritualized dying, describing five temptations people dying face. Those temptations were lack of faith, despair, impatience, vanity and greed. The way to die well, then, was to fight these temptations with their opposites. Dying well meant having faith, hope, patience, humility and generosity.

In the 1400’s the availability of medications for symptom management was non-existent. This booklet served to place reason for many of the experiences people witnessed in the death of a loved one. Without an understanding of terminal delirium and restlessness, it was easier to claim impatience as the cause and pray for patience.

In our modern day, medications and scientific understanding help us recognize and treat the physical aspects to aid in dying well. There is more, however, that may be in our control than we’d like to think.

Suffering, despite what we may believe, is not an easily medicated symptom. Since suffering originates from the mind, from experiences, and specifically beliefs and thoughts about those experiences, the control rests solely on the individual. To die well, without suffering, may incorporate some of the very things this 600-year-old book spoke of.

I have seen despair resolve when the focus of regrets moves towards the hope of resolution. I have seen vanity melt away with the courage to humbly ask for forgiveness. I have seen the suffering that stems from the greed and self- focus of ‘why me?’ disappear with a shift to gratitude for the life one has lived.

What does it mean to you to die well? It’s probably too uncomfortable to equate dying well with successful dying, but let’s at least be aware that some of the suffering we all want to avoid at the end can be dealt with while we are living.

Dr. Clarkson is a hospice physician for Southwind Hospice in Pratt, KS. This post was originally published in Dr. Clarkson's End Notes column for the Pratt Tribune.  It is re-published here with the author's permission under a Creative Commons license.

Sunday, July 26, 2015 by Amy Clarkson ·

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