Wednesday, April 24, 2013
What's Your Vision of End of Life Care?
(Ed. - Today's post is the first from Renee Berry @rfberry at Pallimed who is a digital media specialist with a strong passion and extensive knowledge about hospice and pallaitive medicine. Renee and I co-host the weekly hospice and palliative medicine tweetchat on Wednesday nights (along with Alicia Bloom). We are excited to have her input on the recent TEDMED conference where End of Life issues were featured. - Sinclair)
I noticed an interesting conversation starting on Twitter last week about an illustration drawn as a part of TEDMED's great challenges. TEDMED is an annual conference dedicated to breakthrough thinking in health and medicine. While it is independent of the original TED conference which brings people together from the technology, education and design fields, TEDMED's Great Challenges Program is a series of discussions around twenty complex issues in medicine designed to engage interdisciplinary thinking and conversations.
Palliative care physician, Earl Quijada attended the TEDMED conference last week and shared a photo (which can be seen below) of a sketch about some of the concepts and ideas being shared at the Great Challenges section dedicated to end-of-life care issues. This sparked an interesting conversation about what the illustration portrayed.
EOL #greatchallenges at #tedmed. Death is holding an "invitation" umm @ctsinclair @dianeemeier need help. #hpm. twitter.com/equijada/statu…
— Earl Quijada (@equijada) April 18, 2013
My initial thoughts can summed up in this quick list of 8 tweets...
@equijada 1. Quality of life is can be all about mortal life, it does not need to be a euphemism of an angel + energy + eternal life.
— renée berry(@rfberry) April 19, 2013
#TEDMED @equijada 2. Palliative medicine is about quality of life. It can be for people with serious illness that is not "advanced."
— renée berry(@rfberry) April 19, 2013
#TEDMED @equijada 3 Palliative medicine is NOT abt creating a good death. Research shows this language is not effective for public enagement
— renée berry(@rfberry) April 19, 2013
@equijada 4 While I agree we are a death denying culture, does that mean we push "talk about death" on people as a solution?
— renée berry(@rfberry) April 19, 2013
@equijada 5 Do we illustrate a "normal part of life" with a scary dark skeleton looming over a family's table while they eat?
— renée berry(@rfberry) April 19, 2013
@equijada 6. Can "more voices in the discussion" include groups who built the groundwork for solutions- @capcpallative, @aahpm, @hpnainfo?
— renée berry(@rfberry) April 19, 2013
@equijada 7 Take advantage of resources @getpalliative @caringinfo @nhdd @pallimed @geripalblog @chpcc @hospiceaction
— renée berry(@rfberry) April 19, 2013
@equijada 8 Palliative care is for anyone with a serious illness, from the point of diagnosis. It is much broader than end of life. #TEDMED
— renée berry(@rfberry) April 19, 2013
As more people become engaged and passionate about:
- Advancing opportunities for early access to palliative medicine to relieve suffering and enhance quality of life for serious illness.
- Providing hospice and quality end of life care.
- Engaging the public around these related but not synonymous issues.
Other Notes:
- It's awesome (and appreciated!) that TEDMED is featuring a great challenge on end of life!
- An artist of course has free range to express their interpretation of messaging and in all honesty, while I have concerns about elements of this particular drawing, I really appreciate it because it points out an opportunity for a great discussion.